Often when we refer to new eating habits we refer to it as our “diet” or that we’ve made “dietary changes.” The problem with this language (and I’ll admit that it’s language I’ve often used myself) is that it equates these changes as “going on a diet” such as for weight loss. While some people with chronic pain or illness may want to lose weight, for many others that is not the goal. So I think calling these changes a diet is a big problematic. It’s also problematic for anyone who is struggling with body image or has (or has had) an eating disorder. Basically the word diet is the worst. Instead it can be way better to think of these as lifestyle changes. Maybe specifically nutritional lifestyle changes (since lifestyle changes can also include exercise, meditation, etc.).

I did not need to “diet” nor is it something I wanted to do. I struggled with body image when I was younger and honestly have not owned a scale in over 10 years. I don’t need it or want it. And yet, I wanted to make some nutritional lifestyle changes because I had heard from many people – healthcare professionals and just other Spoonies – that it can help with pain, inflammation, gut issues, etc. I struggled in the past to go on a “paleo diet” or really anything with the word diet in it. When I was hosting my podcast I talked to a few people who looked at lifestyle changes in regards to what we eat instead of diets (link to the podcast – there’s a number of episodes on this subject). I began to think, what if I tried some of these lifestyle changes, implementing them at a pace that feels comfortable and non-restrictive? That’s how I figured out what makes me feel good when I eat it, versus what makes me feel bad.
Lifestyle changes with food/nutrition can totally vary from person to person. I was listening to a podcast that I like this morning and they were also talking about chronic pain and diet, and how one person will advocate for this diet and another will advocate for that diet, and the whole wellness industry is silly. I would say that it really comes down to individual differences. No one person is the same (body or mind) and there are a lot of factors that influence health. Keeping that in mind, lifestyle changes that you make are best done if they are ones that work for you. There’s no guarantee that all of your symptoms will go away, or that you’ll go into remission. That was never my goal personally. I just wanted to see what might help. Taking that attitude and approach (and being flexible with “cheat days” when I need them) makes it much, much easier. At the end of the day, these lifestyle changes are just one way we can keep making the most of it!