6 Ways I’m Managing a Weather-Caused Flare (+ 5 More Ways I Could)

Long title, I know. But nonetheless I thought I’d share some of my tips with you, plus a few other evidence-based ones I found online as I’m trying to get through this. I’m writing this exactly one week before it will be published so fingers crossed that it’s over by the time you’re reading it, but if not, then I’ll just have to accept it as it is. My flare is likely caused by a few things. First, I recently moved and moving is stressful (even a relatively easy move like I had) and stress can cause a flare. Second, I moved from a dry climate in the interior of British Columbia to the wet, lower mainland of BC. I always notice my symptoms, especially pain gets worse when it rains… but then I knowingly moved to a rainy climate (*face palm*). All jokes aside, my symptoms are increased pain, increased fatigue, really bad jaw pain, my left foot is super veiny and sore (my calf is fine though so unlikely anything super serious). How the heck can I manage all of this?

Even on a flare I’ve managed to explore my new neighborhood.
  1. Acceptance. Yes, I know some of you are rolling your eyes or saying that this is ridiculous or unlikely to work. But I find it does. I accept that my pain is here, while knowing that the intensity changes hour by hour, sometimes even minute by minute, and I know that when my flare is over I’ll go back to baseline. Acceptance is helpful. I’ve been doing body scans and other mindfulness activities to help with the acceptance, but honestly just acknowledging my experience without getting wrapped up in it is helpful. Check out this acceptance practice.
  2. Exercise, Movement and Stretching. If you read this blog regularly you know that I like to exercise. And I still pace myself by trying to stay consistent with what I do. I definitely increase my stretching during flares. Particularly I focus on the areas that seem to hurt or need it the most. For example, my jaw is the worst today as I write this, and I’ve made sure to do jaw stretches throughout the day. For more on jaw pain specifically, check out this podcast episode with Dr. Shirazi.
  3. Warm Baths. I LOVE my baths. I literally take a bath 4-5x a week in the winter months. And with the rain, I’m definitely needing them. They help relax my muscles, keep me warm, and are very relaxing. Trust me when I say I could never (and would never) live in an apartment without a bathtub. Knowing what is vital to your self-care is essential to dealing with a flare. Check out this podcast episode on it.
  4. Dressing Warmly and in Layers. Vancouver, if you’ve never been, is a city where everyone dresses in layers. It will likely rain at some point during the day, though you never know exactly when. It could also start off cool and warm up, or vice versa. So I’ve been making sure to put on 3 layers when I go out, and have a pair of mittens on me. I need to remember a hat and/or an umbrella, but I’m working on it!
  5. Hydration. I tend to drink a lot of water. Admittedly more when I’m working. Staying on top of my water intake is so important to managing my flares and really my health! I’m trying to drink 5 full glasses of water a day minimum. I basically keep a glass of water next to me all day and every time it’s empty, I refill it. Listen to my podcast conversation with Beau Berman about gut health and how important drinking water is to him.
  6. Omega-3’s and Vitamin D. I typically try to get these from the foods I eat. Lots of fish mostly (rich in both), as well as mushrooms, spinach, avocado and tofu and really a variety of others foods are rich in vitamin D. These are really important for reducing inflammation naturally and honestly are just really good for you! Also, Vitamin D is a way to combat with the “winter blues” (which I often get) and the more severe, Seasonal Affective Disorder.

So those are the 6 things that I am doing, but what are the 5 things that I’m not but probably should be?

  1. Acupuncture. This is actually an evidence-based and recommended treatment for chronic pain. I’ve had it in the past and I’m hoping to start back up with bi-monthly sessions next month. Listen to the podcast episode on recommended treatments for chronic pain for more info.
  2. Massage. I miss getting massages. It’s been nearly a year since I had one, and this is also a service I used to get bi-monthly. I’ll likely also start these back up soon as well. Clearly I need to. The benefits of massage can be heard in the podcast episode with Danielle Potvin.
  3. NSAIDs. I’m not a fan of these drugs to be honest. They can cause stomach problems when on them long term. I’ve drastically cut back on them and only take them to supplement the more natural medications I take (i.e., CBD). If you’re aware of the risks and find them helpful then this can be a helpful solution.
  4. Natural supplements. The only natural supplement I currently take is magnesium bis-glycinate which is a muscle relaxant (and I mainly use it when I’m menstruating). Other recommended supplements are fish oil, ginger (which I sometimes have in food and/or tea), turmeric (which I sometimes have in tea), and gingko. These are definitely worth checking out to use in addition to some of the other suggestions.
  5. Limit Stress. Oh I can’t wait until I’m passed the stress of the move and starting up new counselling practices. The truth is there is always some kind of stress in our lives and it really comes down to how we manage stress. I typically do a good job with mindfulness, meditation, yoga, and relaxation practices. So this might just be a reminder to do a bit more of that. And also, if you are able to avoid stress then that’s a good plan (I do not plan on moving again for quite some time!).
Taking it easy on Halloween. Needed some time to relax after the move.

So that’s it! 11 ways in total to manage a flare. Keep making the most of it everyone!

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Top 10’s: Ways to Improve Your Physical Health When You Have a Chronic Illness

I will start off by saying that a “top 10” is no way a comprehensive list, because there are lots of ways you can improve your health (or at least keep it at base line) when you have a chronic illness. A lot of this I’ve learned through my own trial-and-error, through my studies and work in psychology/psychotherapy, and from conversations with other Spoonies and healthcare professionals. So, this is basically my Top 10 list, and I’m hoping you can pull a few things out of it if you haven’t been doing these already. I’m also going to link some of my blog posts and podcast episodes if you want to have a deeper dive into these topics. Also, I couldn’t determine an order for these, so they are not necessarily in order of importance (assuming there is one)!

Are you ready for my Top 10?!

Eating healthy. This is so important and often overlooked. Eating food that is organic and free-range is ideal, though if you’re like me this might not be affordable. If that’s the case, throw in some of that where you can and otherwise focus on the food groups, especially lots of green veggies. Limit your red meats, and of course limit any food that makes your symptoms worse (for some people that’s gluten or dairy). Be open to trying out different diets (Paleo, Keto) or fasting – but always consult with your healthcare professionals first. Check out this blog post on eating healthy, and this podcast episode on living with allergies.

Drink lots of water. 6-8 cups a day is ideal. I’m currently doing a challenge through Shape and Foster and part of that challenge is drinking 1.5L of water per day. Honestly, some days I really struggle but I also notice that the days I drink that much water, I drink less other stuff (that’s not healthy) and I feel the best. Water is important for our overall health and can’t be overlooked! I’ve got a blog post about it, and it is an essential of health which I discussed on the podcast.

Eat healthy, drink water.

Take your meds! Medication management can be super annoying but you’re being prescribed them for a reason, and there is typically a lot of science around them. I sometimes forget to take my meds (not going to lie) but again, I do feel best when I take them as prescribed. This doesn’t just go for Western medication either, try out some Eastern ones (head over to a naturopath, chiropractor, or other practitioner) to get some holistic care going. I’ve got a blog post about health management, and a podcast about holistic options.

Sleep hygiene. It’s so important for our physical (and mental) health to get a good sleep. Our bodies need to feel energized and rested when we wake up. Spoonies definitely have extra challenges with sleep. I often toss and turn because I’m never comfortable. However, doing proper sleep hygiene can at least minimize some of these problems and get your a better sleep. When I have proper sleep hygiene, I notice a 50-80% improvement in my sleep! No jokes! Check out the blog post and podcast episode for more.

Take your meds, get some sleep (or end up looking like this!)

Exercise. Yes, exercise definitely helps with pain reduction, and can increase things like mobility. There is a ton of science behind it. That being said, you have to be careful not to go over your limits (i.e., just push yourself to your edge but not beyond it) because you don’t want to hurt yourself. Low impact is recommended for chronic illness (walking, swimming, etc). If you’re not exercising, then just experiment with small amounts and gradually work your way up. This is another area that it is important to consult with a professional on. I do an exercise vlog post every 3 weeks, and I did a full podcast episode on exercise too.

Spend some time outdoors. Interestingly I just did a post on this last week that got very few views despite the fact that there is again science supporting how much this can benefit both our physical and mental health. Step away from the city if you can, even if just a few hours. Take the opportunity to breathe in fresh air. Tie it into exercise by going for a walk. Tie it in to stress reduction and just let yourself be. Though I don’t have an episode specifically about this, there is a podcast on holistic approaches that ties in nicely.

Exercise and spend time outdoors (my solo trip to LA, 2018).

Reduce your stress. Being calm, and having as little stress as possible (which I get it, sometimes just having a chronic illness is stressful!) is so important. Stress is a common cause of flares in many autoimmune diseases and in generally, always manifests into nasty physical ailments of one kind or another. This is a good reason to learn some mindfulness skills (which I do a vlog post on once a month). I did a whole podcast episode on how stress and anxiety manifest in the body as well – find it here.

Get involved in your care. This often means we have to be our own advocates for our health. That can include being a little “pushy” with our doctors (I mean it’s ridiculous that we have to sometimes but medical gaslighting is a huge problem). It also means that you may have to create a healthcare team for yourself. I’ve found this to be extremely beneficial for me. For more on getting involved check out this blog post and this podcast episode.

Reduce your stress and get involved in your care (and no this is not actually how I meditate lol)

Self-care. There are 5-6 dimensions of self-care (depending on who you ask) and physical self-care is one of them. A lot of the things from this list apply to physical self-care, but you can also add a lot more, depending on what you like – I like Epsom salt baths! I also mentioned that challenge with Shape & Foster earlier which this month is putting an emphasis on physical self-care. Hear more about them on the podcast. I do monthly premium blog posts for self-care which you can sign up for here.

Goal setting. No one can be expected to make any changes to any part of their life – including the physical aspects – overnight. That’s why setting goals can be really helpful. If you’re not currently exercising, then committing to 3 1/2 hour walks per week might a good place to start. Or increasing your veggie intake four times a week. Or spending time outdoors once a week. Whatever it is, make a plan and make it one that is challenging and yet you can stick to. I recently did a blog post on goal setting. This is the podcast episode it ties most nicely in with.

Spend time on self-care and set some goals (my goal to be a llama – jk!)

Okay, this was a longer post than normal but I hope you have a few takeaways! Keep making the most of it everyone!

Exercises for Chronic Pain: Upper Body Workout

Most of my home workouts come from an app called 30-Day Fitness. I’m not affiliated with them at all, and there are a ton of great workout apps out there. Since the gyms are closed because of Covid (where I live anyway), and most people with chronic illness would not feel super safe going to them at this time, coming up with a good home workout routine is important. These are just a few of the exercises I do. Make sure you consult a professional as necessary before trying anything out. Everyone’s abilities and needs are different.

For more on why exercise can be helpful for chronic pain, check out my podcast episode featuring Dr. Frank Nhan, “Exercise for Chronic Pain.” The link for Apple is below, and the show is also available on Spotify and everywhere you get your podcasts. If you like what Dr. Nhan has to say, please submit a review on Apple!

https://podcasts.apple.com/ca/podcast/chronically-living-and-how-to-make-the-most-of-it/id1521945719?i=1000488425134

Chronic Pain and Trying to Produce More

As the second post in the October linkup, I decided to use the prompt of producing. Why? Because I have started and plan on continuing creating more and more content and a few other goodies in the next while. However, sometimes chronic pain, fatigue, and the mass amount of appointments I have coming up, get in the way of what I want to do. Luckily, I’m not working right now, but with school there is a lot of work, so factoring that plus exercise and trying to keep my body as “healthy” (silly term when dealing with chronic illness) as possible, and volunteering between 4-8 hours a week, I find that I run out of time in the day as quickly as I ever have!

Image from: https://www.forbes.com/sites/gabrielshaoolian/2018/06/13/how-to-actually-market-your-content-marketing-initiatives/#77e2a40021f9
Linkup URL: https://www.achronicvoice.com/2020/09/28/october-linkup-2020/

Let’s start with what I have been doing. First of all, I’ve been putting out weekly blog posts like these for a few years now. I love it and will continue to do it (I hope you all love it too!). In the summer (or was it spring?) I started to bring you weekly Sunday video content as well. These I am usually able to record and edit at least a few weeks in advance. Did anyone ever mention how much work editing is? I feel like film editors do not get enough props! And I’ve started to bring some premium content (paid membership… i’m not working right now…) which is honestly worth the small investment you’d put in because that content is top notch! Of course, I have my podcast, Chronically Living and how to make the most of it. I love podcasting and have a ton of topics written down. This does involve planning (I like to have a solid outline for solo episodes, and there is tons of planning involved in interviewing), and while enjoyable, it is work! I also co-host another podcast (Into Everything with Pete and Kels) that is pretty light and fun (great if you’re looking for something pop culturey/easy-listening) but again that involves a lot of work (slightly less because my co-host splits the work with me).

The other podcast.

Now, what do I have coming up? Well, remember when I wrote that book in the spring? I still need to edit it (I started but then stopped due to lack of time) and write a proposal because I would like to get it published instead of self-publishing. And then there is the children’s book I wrote, which my friend is illustrating for me. We plan on self-publishing that one but will probably need a GoFundMe campaign to cover the costs (it’s about a diabetic dog and is a great way to talk to children about chronic illness). Finally, I want to create some merch to sell, but that is a project and a half indeed. Create, create, create is the name of the game right now.

If you enjoy this blog, definitely check out my podcast!

I did mention some of my roadblocks (time, money) but there are others that I encounter. One big one is fatigue. If I don’t get what I need to get done before supper, I’m pretty much out of the game afterwards. Sometimes I can do some promo pic creation in the evening but that’s about it. And honestly, resting is part of self-care so I don’t get upset with myself for needing it, yet at the same time, I wish I could do more in a day. The second roadblock is pain. The weather is starting to change so my body is freaking out, plus my hip tear makes it hard to sit for more than about an hour at a time (I probably should have a standing desk now that I think of it so at least I could alternate positions). Finally, I seem to have a lot of appointments. Okay, this is mainly because I only have benefits until mid-January, but I’m probably moving at the end of December (I’ll let you all know when it’s official) so I really only have them until about the end of the 3rd week of December. Next week for example, I have an appointment with a surgeon on Monday, psychotherapy on Wednesday, chiropractor on Thursday, and massage therapy on Friday. Busy!

His snuggles used to make me feel better when I was tired or in pain. RIP my baby.

Will this stop me from getting everything I want to get done? Possibly. Or possibly a bit of it, but it won’t stop me from trying to create when I can, because that’s what I love to do.

10-Minute Body Scan

Welcome back for another, and a little bit longer, body scan. Body scans can be excellent for relaxation, improving mindful awareness, and even pain management. Join me in this 10-minute scan, which can be an amazing way to start your day, take a break half way through, or even end it.

Exercises for Chronic Pain: Core

I have found that strengthening my body has helped a lot with chronic pain from fibromyalgia. I know that not every chronic illness warrior is up for this type of workout. When I started I went slowly, and added more exercises as I got stronger and found a general decrease in pain. It may not work for everyone but it certainly works for me!

Exercises in this video:

*front planks
*side planks
*bicycles
*jumping leg tucks
*one arm planks with knee touches
*abdominal cocoons
*bent knee leg raises

Taking a Break with Family

As I titled this I realized some people might automatically read “from” family which is 100% not what I’m going for. Rather, taking a break from all of the other things in life to spend time WITH family, is something some of us probably need right now (some of you may have just spent the past 6 months locked up with your family and may need the opposite type of break)! I needed the break for a couple of reasons: (1) I live far from the rest of my family, (2) because of the pandemic this is the longest I’ve gone without seeing them, (3) work has been hella stressful (also due to the pandemic), and (4) while your support system can include many other people, mine also includes my family.

Me and the bros in Kalamalka Park, BC. Epic hike!

And so, I risked it and went on a plane, taking me from Ontario to BC. (To be honest the airlines are doing a decent job at making travel as safe as possible and all passengers seem to consider safety important). Both of my brothers live in BC with their partners, and it was my younger brother whom I stayed with. The trip itself was a mix of physical activity (hiking, kayaking, yoga – all my faves) and chill time (eating and drinking at wineries and pubs, and watching movies).

Yoga day at a winery overlooking Lake Okanagan.

There are two parts of my trip that I valued the most. One was hanging out with my younger brother, both the first day I got in when we just toured around town and caught up on what’s been going on with one another, and then when we binge watched three movies back-to-back on Sunday night because we both love movies. The other was when my older brother and his wife joined the other three of us on a hike, winery tastings, and dinner, allowing us all to spend some time together. Interestingly it is my older brother I’ve seen the most of during the past few years as his work often brings him to Toronto to visit. Because of Covid-19, his company has restricted travel until the new year.

How we do a winery!

Having a mental break and spending it with people I love was so important. I maybe pushed a bit too hard on some of the hikes but it made me rethink where I want to be in the near future, and to be honest, I never consider change a bad thing. We’ll see where the future takes each of us.

If I can also get some thoughts, prayers, whatever you personally do for Spike I would really appreciate it. He is at the vet, having been extremely sick over the past 18 hours.

When Spike was feeling much better on his 11th birthday a few weeks ago.

Keeping Track of Your Mental Health

As my many of my fellow chronic illness warriors know, mental health struggles such as depression and anxiety are real…ly common . Not that they are necessarily constant, though the can be. I actually do a whole episode of my podcast on mental health and it’s relation to chronic illness, so feel free to check that out for more info. For today however, I want to take a look at one element of our mental health, which is commonly experienced by everyone (seriously everyone) whether or not they have another underlying physical or mental illness. Negative automatic thoughts (or NATs).

download.jpgImage from: https://www.cbtcognitivebehavioraltherapy.com/what-is-automatic-negative-thoughts-ants/

NATs are those subconscious thoughts that you don’t realize you’re having until you do (and even then you may not realize that’s what they are). It’s the thoughts of “I suck,” “how could I be so stupid,” “what an idiot I am,” “why am I dumb enough to say that,” etc, etc, etc. Are they accurate thoughts? Usually not. But we all have them from time to time (or more often, but we’ll get to that in a minute). These thoughts, according to cognitive behavioural therapy, can lead to anxiety and depression. Why? Because our thoughts cause our feelings. If we keep telling ourselves that we are “stupid” or “not good enough” or whatever terrible thing we say to ourselves, we will (a) start to believe it, and (b) feel upset about it. Makes sense right?

viciouscircle1
Image from: https://iveronicawalsh.wordpress.com/2012/03/18/the-vicious-circle-of-negative-auto-pilot-thinking/

If you’ve gone to a CBT therapist, you may have experience with thought records. Basically, this is a sheet (or note on your phone) where you record your thought and your feeling every time you have one of these negative automatic thoughts. The point is twofold. First, it’s to see how often you are having these thoughts and what emotions are connected to them. Second, it allows you the opportunity to begin changing these thoughts. If you can catch yourself saying “I’m stupid” then you can change it to, “you know that may have not been the smartest choice to make but I’ve learned from it so I won’t do it again.” Or more simply, “I’m not stupid, I’m smart, I just did a silly thing.” To be honest, this is a much harder skill to learn than it seems, but it can be done.

unnamed.gifImage from: http://www.allaboutdepression.com/workshops/CBT_Workshop/CBT_12.html

Changing these thoughts into positive ones instead of negative is an ultimate act of self-love. To be honest, since I started to practice this a few years ago, I have less NATs than I did before. Yes, they still pop up, but I can catch myself and reframe the thought because I know that the thought isn’t true. I encourage everyone to try to keep track of your thoughts for awhile so you can catch these nasty little NATs and try to take some ownership of your mental health through self-love.

Practical Tips: The Thumper

Sometimes when we can’t afford to go to chiro or physio, or we just need to get by in between appointments, there are some awesome self-care items we can buy that will provide a ton of relief. In this week’s video, I tell you about one of my favourites. For more tips, check out my podcast – Chronically Living and how to make the most of it (available on Apple Podcasts and Spotify). The episode with Queenie Wu, and the upcoming one with Dr. Frank Nhan, will get you some more info on what you can do at home (as well as great reasons to check out physio and chiro as health options).