This is a metaphor I found at this website. I love what the writer of it did here. It’s an alternative to spoon theory, where the biggest different is that spoon theory only focuses on energy, and this metaphor – a knight in battle worn armour – looks at all aspects of having chronic pain/illness. At the end of the day, you can prefer whichever metaphor you do, but I like to bring some psychoeducation and alternative methods of thinking to you, because I like when they are brought to me! Stay strong and keep making the most of it!
Tag: chronic illness warrior
Video: Daily Exercise – Mountain Hikes
This is not for the faint of heart. To be honest, this is great if you’ve been building up your exercise game and if you do some hiking already. I did a video post last year on more gentle hikes, which are a fantastic alternative to going for a walk. This is kind of levelling up those gentle hikes. Yes, I do this even with chronic pain. Why? Because I love hiking, and will take the time to recover (for example, the day after I did this I did a channel float where I sat on a tube for 3 hours and floated down a channel/river). Remember to please consult with your healthcare team before starting any new exercise. Alright, take care and keep making the most of it!
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How Did I Prevent a Flare?
Plus who is this blogger and why should you care what I have to say?
I think that I sometimes give off the impression that I’m 100% fine 100% of the time, which as anyone with a chronic illness or dealing with chronic pain knows, is simply not true. What is true, is that I’ve learned several strategies over the past 5 years to improve my well-being, even on my days of struggle. Let’s take this morning (Saturday) as a write this. I had some pain in my hips (both of them). I live alone and needed groceries and don’t have a car, so I walked to the grocery store. My arms killed on the way home because I accidentally bought more than I could carry. Then the apartment building door whacked my right hip (the less sore of the two) which obviously caused more pain. And then I became angry. Like swearing, yelling, grumbling, angry. I got text messages and was annoyed at the people texting me even though they weren’t saying anything bad. Then I noticed what was happening. Was this anger helpful? No, if anything it was making my pain worse. So I took a moment, watched my breath flow in and out of my body, and calmed down mentally… and then it helped my body to calm down physically.
So… who am I? I’m Kelsey. I’m a person with lived experience. I have diagnoses of undifferentiated connective tissue disease, fibromyalgia, and glaucoma. I’m also someone who meditates daily (over 100 days in a row – my longest streak). I’m someone who has bad days, and good days. I make it my priority to have way more good days than bad ones. I’m a person who went to psychotherapy among other treatments (physio, chiropractor, naturopath, massage, etc.) and found it helpful for my anxiety and ultimately my pain. And then I became someone who went back to school to get my Masters in Counselling psychology, which I have now completed, despite the fact that I was working full time and in pain. I am someone who is committed to helping others who are struggling. And I am someone who wants to share what I’ve learned – and what I’m still learning – with all of you. I am me.
Why should you listen to what I have to say? Well, there is no particular reason and it’s completely up to you! What I can say, is that I try to bring my personal, lived experience, with research (yes I actually do a ton of reading of scholarly journal articles for my posts) and clinical experience so provide you all with different ways to improve your well-being. Take me this morning for example. Would it have been helpful to stay angry all day? Likely I would’ve had to spend it in bed and probably wouldn’t have written this post. I’ve found this to be helpful for me, so it just might be helpful for you. Along with this blog, I have other resources too. Like my podcast and YouTube channel, which you should definitely check out if you haven’t yet.
Okay, so I thought we’d end on a fun note. Two truths and a lie. I’d love to hear in the comments which one you think is a lie.
1. I have spent the evening hanging out with a celebrity.
2. I recently got a new puppy.
3. Pineapple is my favourite fruit.
My podcast topic this week was utilizing your authentic self, and next week is about evidence based treatments for chronic pain. My YouTube channel has a new video for building self-awareness (which is how I knew to calm myself this morning!). Until next week, keep making the most of it!
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Spoonie Stress
It’s not really a surprise that Spoonies have more stress than healthy folks. Chronic illness and chronic pain warriors just have a lot more to deal with. Coming up with ways to relieve stress is important, and something I try to pay attention to. As stress accumulates it can lead to mental health problems, and quite often, especially with autoimmune diseases, flares. Today I thought we’d focus on some causes of stress and I’ll give some ideas (that work for me) for you to try out to see if they help at all.
First, I thought we’d start off with a few definitions. The reason I want to give these is that often as a therapist-in-training, I see that people don’t really understand the meanings of the words they use, nor are they aware of the difference appropriate emotional responses and ones that don’t fit the situation.
- stress – normal, physiological reaction caused by the fight-flight-freeze response in our brains, alerting us that something needs our attention. It’s neither good nor bad, but is a signal telling us that we need to act on something. podcast
- anxiety – “an emotion characterized by feelings of tension, worried thoughts and physical changes like increased blood pressure” (American Psychological Association). Anxiety is also not inherently good or bad. It’s another natural response of the fight-flight-freeze part of our brain. It’s also normal and part of what makes us human. There is no way to be totally free of anxiety. Fear, on the other hand can be extremely protective and it can be easily confused with anxiety. podcast
- Anxiety disorder: anxiety that is out of proportion with the situation, and is long-lasting and severe can indicate an anxiety disorder. Someone with an anxiety disorder has “recurring, intrusive thoughts or concerns” (APA)
- depression: an emotional disorder that can include feelings of sadness, loss of interest in pleasurable activities, and low energy and motivation. Sadness is a common emotion that is important to our functioning. Depression occurs when sadness doesn’t just “go away” on its own. Both anxiety disorders and depression are helped with psychological treatments. blog, podcast
- trauma – “an emotional response to a terrible event like an accident, rape or natural disaster. Immediately after the event, shock and denial are typical. Longer term reactions include unpredictable emotions, flashbacks, strained relationships and even physical symptoms like headaches or nausea” (APA). I’ve heard this one be misused often, so just be aware of whether you’re actually experiencing trauma. This can also be helped with psychological treatments.
Okay, now that we’ve got that out of the way. What are some common causes of stress in Spoonies?
- physical symptoms – flares, pain, and basically any other annoying and/or debilitating symptom that comes with your chronic illness. blog
- medical gaslighting – when a doctor or healthcare professional dismisses your pain and/or symptoms. podcast
- interpersonal relationships – difficulties with your partner, family, or friends often stemming from a lack of understanding of your illness. blog
- finances/insurance – even with insurance there is a cost of medications and other treatments that may not be covered or give you as much coverage as you need. blog
These are of course, just a few, and you may experience a lot of other stressors depending on your illness and overall life situation. The point out reducing stressors like this is to improve your overall quality of life. So, here are some suggestions that I’ve found to be helpful for each of these (I’m going to link some of my other posts and podcast episodes in case you want more in-depth information).
- Mindfulness, exercise, sleep, and diet. This means daily practice of whatever way you stay present. Getting whatever type of exercise is accessible during the day (even if it’s a short walk). Practicing good sleep hygiene. And eating as healthy a diet as you can. podcast, podcast, podcast, podcast (yes, one for each of these).
- Being a self-advocate when it comes to your health and knowing your rights. The medical gaslighting podcast episode I mentioned earlier goes into being a self-advocate. For disability rights check out this podcast.
- Effective communication and emotional regulation. We can’t control other people but we can definitely control ourselves, even if our emotions are high. podcast
- Budgeting, budgeting, budgeting. I am without health insurance for the first time in many years. And yes, I live in Canada where healthcare is “Free” (with the exceptions of medications, dentistry, and adjunct care such as physio/chiro/naturopath/massage/etc). Yet I’ve seen the chiropractor twice in the past 3 months (with another appointment today) and gone for a massage. I’ve very meticulously budgeted these in because they are so helpful. The blog post mentioned for finances incorporates budgeting.
On top of all this, practicing self-care (podcast) is very helpful. If you don’t like the term “self-care” because it’s been waaaay overused in the media than maybe think of it is as “ways to improve my overall health.” It includes domains of : physical, emotional, intellectual, social, spiritual, and work. It is also incredibly helpful in reducing stress levels. I’m going to be hosting a self-care challenge starting on April 24 on the premium blog. To sign up for the challenge it is only $5 and you get 4 weekly premium posts, motivation for the challenge, ideas and help with the challenge, and an opportunity to be featured on the blog and/or podcast! Stay tuned for more!
Until next week Spoonies, keep making the most of it!
Cooking with Kels: Eggplant Parmesan
Okay, so this is the first time I’ve ever made Eggplant Parmesan yet alone use this particular recipe. You can find the recipe I used here. By the way, this ended up being pretty good. I’m kind of hit-and-miss with eggplant but I liked this. I mean anything with cheese on it is good! That being said you could use dairy free cheese to make it, well, dairy-free. You can basically modify as needed, which is what I do depending on what I have in my house. Remember that healthy eating and nutrition is essential to our health (as in the podcast episode with Dr. Steph, which you can find here).
Let me know what you think of the recipe, and keep making the most of it!
Optimism, Pessimism, Mental Health & Chronic Illness
“Positivity is not about how to maintain a positive attitude, but how to produce positive emotions.” – Frederickson, 2009.
“Research indicates that pessimism correlates with depression, lowered achievement, and health problems.” – Martin Seligman, 1998.
If you don’t know who Seligman is, that’s totally okay and to be honest totally normal if you haven’t studied psychology. He’s the founder of positive psychology (which does not say that positivity is the cure to mental health, just to be clear) and has done a lot of research in this area. For me, the interesting part of the statement isn’t the mental health aspects, which are a bit less surprising, but the physical health part, because what does that mean for people with a chronic illness?
Okay, so here’s a quick overview of some research of optimism vs. pessimism and chronic pain or illness. According to Forgeard and Seligman (2012) disease may progress slower for optimists than for pessimists. Optimists typically have better cardiovascular (heart) functioning and less heart disease, and they may have better immune functioning (though the research is more mixed on that the later). They also found that cancer patients had better survival rates one year after diagnosis if they were optimists, and that in general optimists are about half as likely to die from whatever disease they have than pessimists are. They do caution that some studies don’t show this effect and/or the results are negative, but it’s theorized that the stage of disease may play into this. They also theorize that unrealistic vs. realistic optimism plays a role. (I’ve often said that you can be – and that I am – a realistic optimist).
In terms of chronic pain, Ramirez-Maestre et al. (2012) found that optimism leads to better overall well-being and this might have to do with coping strategies that optimists and pessimists use. Basically, pessimists are more likely to use passive coping strategies such as avoidance and optimists are more likely to use active coping strategies such as acceptance. Active coping leads to lower pain severity, less depression, and better daily functioning.
I can hear some of you saying, “But I’m naturally pessimistic! I can’t help it!” Positive psychology actually shows that we can have learned helplessness and learned optimism – yes, I said it, we can learn optimism. It’s not necessarily a fixed part of personality and there is research to support that. Basically, if we learn to combat negative self-talk, we can become more positive. Pessimism is caused by selecting our attention to certain things as well as a lack of internal confidence in our abilities to control or change parts of our lives (learned helplessness) so when we fail at something, we blame it on something within us we can’t change. I hope I didn’t lose anyone during this.
If you want to be more optimistic here’s something things you can do, according to Seligman:
- utilize gratitude (maybe use a gratitude journal or write a gratitude letter)
- help others in need (by volunteering for example)
- challenge your negative thoughts and believes (what’s the evidence for and against them)
- tackle your negative self-talk (trying changing it)
In the Science of Well-Being course taught by Yale professor Laurie Santos, she explains that only 50% of our happiness comes from genes. So, if you’re still believing that you can’t change from being a pessimistic to an optimistic because it’s how you are born, then remember that. 10% of our happiness comes from our circumstances, and the last 40% comes from our actions and thoughts. Which means, you can still improve your levels of happiness (and thereby some aspects of your health) even if you’re not naturally inclined to optimism.
I hope this was helpful for some of you! Let me know how it goes with those four techniques to learning optimism! Keep on making the most of it!
Daily Stretches: Chair Yoga
Back after my hip surgery I wanted to continue to do yoga but had to be very careful. (Technically I still have to be careful, just not as). So I found chair yoga on YouTube and thought it was great for people with limited mobility. I modified a lot at the time, so I suggest if you’re going to try these out, you can modify so it’s safe for you to do depending on your needs. I’m a big fan of yoga practices because it has so many health benefits. Yoga falls into the category of mindfulness. You can check out my podcast on that topic here.
The YouTube channels I like for chair yoga are: Happy Yoga and Toronto Rehab.
Enjoy your yoga today and keep on making the most of it!
Integrating Health with Mental Health
Recently I read an article in a psychotherapy magazine put out by the BCACC (British Columbia Association of Accredited Counsellors) about how therapists can and perhaps should integrate health promotion into their clinical practice. Being interested in health psychology anyway, and wanting to work with people with chronic illness as well as mental health problems, I devoured the article. Then I did a quick google search to see what others are saying. And while there are not a ton of journal articles on the subject, there are a few, all pointing to the same thought – this is something therapists should do. What makes it difficult is that psychotherapists, whether they hold a Masters or PhD (or not, depending on where you live they may not need either), typically don’t have a lot of training in health outside of mental health (always a little bit as it relates but rarely a large amount). This makes me curious as to what everything thinks about therapists encouraging health promotion, in some way, during counselling.
What this article really looks at is not just physical health or mental health but all components of health. A holistic approach. Sometimes people go to therapy for things like weight loss, which in that case, health promotion and education seems necessary. Other times someone might bring it up as a secondary concern. There’s also, of course, the interrelation between things like exercise and nutrition and mental health. As well as sleep and mental health. See where I’m going with this? It actually might be almost impossible for therapists to not integrate health into counselling. So, while I usually save this kind of stuff for my premium blog, I thought I would share some health behaviours I’m going to put extra effort into this week, and I hope everyone reading thinks about some that they can as well! Body-mind connection week indeed!
- nutrition: I’m going to go with making sure I eat fruit everyday (which I typically do but sometimes stumble on the weekends)
- exercise: putting yoga back back into my routine at least 2x/week
- sleep: ensuring I don’t have anything to drink after 8pm (part of sleep hygiene!)
- other (social, hobbies, gratitude, mindfulness): playing the piano daily (I haven’t been playing as much as I would like)
As you can see, integrating health is rather inclusive and definitely extends beyond just physical aspects. Medication adherence can be another really important one for chronic illness warriors. The article I read speaks about Maslow’s hierarchy of needs, which I’ve mentioned in previous posts. We need to take care of our basic needs in order to take care of our higher needs. The three basic components of physical health I mentioned above are so important. So here’s my question (and I’d love answers in the comments), would you want your therapist to help you with aspects of health promotion that you are neglecting? Why or why not?
Until next week, keep on making the most of it!
Dealing with Ableism
I will admit that I haven’t had too many issues dealing with ableism. However, it’s an experience that everyone dealing with a chronic illness (visible or invisible) or a disability has had to deal with at some point. Emotions can range from moderate annoyance to incredibly frustrating depending on the situation. At work in the past I’ve been up front about my health, which also acted as a preventative measure against ableism. But ableism (like sexism, racism, ageism, and for forth) can happen anytime and anywhere. So how can we deal with it?
My recent experience actually happened at my apartment building. I was carrying three grocery bags and waiting for the one elevator in the building. Because of Covid it’s just one person in the elevator at a time (unless you live together) which totally makes sense. Now, I’m young and obviously my health issues are invisible, but also I was carrying three very full grocery bags and had walked ten minutes with them already. I live only two floors up so I do often take the stairs when I’m able. And the building is only four floors total. Well, this young guy comes in from outside, sees me waiting for the elevator and then says, “even if it weren’t Covid, I would take the stairs.” And then he proceeded to take the stairs. Now, there is a chance he wasn’t making a comment about me taking the elevator, but I certainly took it that way. I would say I was moderately annoyed, because again, even if I was totally okay I was holding groceries!
I feel like there are two approaches to take with this kind of scenario and it really depends on the specifics of the situation.
- I can let it go: This means realizing that while this guy should not have commented, he probably didn’t know any better. Does that make it okay? No, but sometimes there isn’t a chance to do #2. Part two of this answer is that I can regulate my emotions well enough to not be upset by one simple interaction. If I was running into this guy every day and he kept saying similar things, that might be different. I can choose to take this one incident to heart or not.
- It’s time to educate the other person: Again, this depends on the situation. Is there going to be enough time? Will the person be open to listening? Is the setting appropriate? And so on. However, I think this is an important thing to do when possible. “Sometimes people who look healthy have invisible illnesses or disabilities. How familiar are you with that?” I’m sure this is not the best worded example of what to say (feel free to comment better ones!) but you get the picture. Take back the power in a respectful way!
The truth is, any time of “-ism” will not disappear unless the community (both those directly effected and those not effected/allies) stand up to it!
I also, want to take a moment to let everyone know that I was recently a guest on a podcast called BeFun BeKind. Check out my appearance here, where I talk about self-acceptance. Until next week, keep making the most of it!
The Power of Words
I know most of us are probably familiar with the phrase, “the pen is mightier than the sword,” and I definitely think that is true. Not just because I’m a writer (I love to write everything – this blog, self-help books, fiction novels and short stories, poetry, screenplays/teleplays) but because there is research that shows that writing (and very specifically journaling) is good not only for our mental health, but our physical health as well. This is one reason Chronic Illness Warriors might want to jump on the journaling bandwagon.
So the whole reason I wanted to write about this is because I was re-reading a textbook for my practicum (basic counselling skills, etc) and one of the interesting things that I read was that a researcher named Pennebaker found that people who record “troubling experiences in diaries showed better immune system responses and significantly better health than those who did not.” Now, I’m not saying I think that any kind of writing is going to suddenly magically cure any of us and we’ll just feel 100% better by doing so. The research though is super interesting. I think that most people can acknowledge the mental health is helped by sharing our story – through therapy, support groups, and writing/journaling. I personally find it just good for my mental health to do any kind of writing, including creative writing, whether or not it directly has to do with my struggles (let’s face it, every writer has a character who is more like them). It can feel good to journal because it can allow you to process, be reflective, and just get something off your chest, and it’s particularly effective if you are struggling with your mental health on top of your physical health.
In terms of physical health, researchers have found journaling to help with viral infections such as Hepatitis (so yes, potentially even Covid-19 as well). There was also a study that looked at gratitude journaling by those with heart failure, and found that morbidity was decreased and inflammation was reduced in the majority of patients. Now obviously more research always needs to be done but it is an interesting and promising start. How exactly does it all work? Well, that’s not 100% clear but journaling can lessen overall stress (for those reasons I stated for mental health) and stress and immune functioning are related, so it kind of makes sense that like some other mindfulness activities, journaling (or perhaps other forms of writing) can be helpful. I’m all about the “even if I just feel better today” (or for a few hours) attitude. Why not help ourselves in the present moment? All we really have is this moment, because the next one doesn’t exist yet, and the last one has passed. In this moment, if journaling helps me feel better and potentially helps my body and mind function better, than maybe that’s a good reason to make today the day you start a journal.
Have a good week and keep on making the most of it!
Chronically Living 