Video: Daily Mindfulness – Clouds in the Sky

One way to create distance between us and our thoughts is to help move them along (which in turn changes the way we perceive our thoughts) so that we don’t get hooked by them. This is done through a visualization, imagining you are looking up at the clouds drifting by and you can just place your thoughts onto them.

Keep making the most of it everyone!

Video: Values-Based Living – New Years Message for Spoonies

This year, let’s focus on living by our values instead of setting goals. Connecting with our values is one way to improve our lives with chronic pain and illness. Check out the video below for more on the difference between values and goals:

I hope this helps us all to make the most of it in the new year!

How Can Magnesium Help My Physical and Emotional Pain?

It’s not a secret that I like natural methods for helping physical and mental health. I’m not against medication – I take it for my AI disease and additional for pain as needed, and I often encourage clients to take it for their mental health issues if needed – I just prefer a combination of Western medicine and natural healing. People see me as a clinical counsellor because they want coping skills for their mental health. Coping skills are a natural way to heal. Sometimes supplements can also be very helpful, especially ones that tend to help both physical and mental health. So this week I thought we could talk about the benefits of magnesium (something I take) for our holistic health. Did you know that approximately 50% of Americans (likely Canadians too) don’t consume enough magnesium (Centre Spring MD). “Enough” magnesium would be between 300-420mg per day and up to 600mg per day.

Mental Health & Magnesium
Magnesium is something I typically take around my period. I tend to get bad cramps and it helps to relieve them (particularly the type of magnesium I take) and I’ve also noticed a lot less PMS-type symptoms since doing this. While the research doesn’t mention PMS, it does talk about depression and anxiety. According to research by Botturi, et al. (2020) magnesium has been shown to reduce depressive symptoms and even reduce the risk of developing a depressive disorder, if taken orally. Low magnesium levels can also be a cause of anxiety (or worsen anxiety) and cause difficulty with sleep (which often overlaps with anxiety and depression) (Ferguson, 2020, Healthline). It seems magnesium plays at least a partial role in the onset and/or maintenance of anxiety and depression (in some people at least).

Physical Health & Magnesium
As I mentioned magnesium has helped me with pain. The type I take (glycinate) is a muscle relaxant. In general people with low magnesium have been shown to have more muscle pain then those with sufficient amounts (Ferguson, 2020). There is also research to support that magnesium plays a role in the “prevention of central sensitization and in the attenuation of established pain hypersensitivity” (Na, Ryu & Do, 2011). Many of us with chronic pain are (or become) hypersensitive to pain. This seems to suggest that increasing our magnesium intake can help with the reduction of pain. These researchers also looked at certain types of pain such as perioperative pain, neuropathic pain, dysmenorrhea, tension headaches, and acute migraines and found that increasing magnesium helped with these.

How Can We Get More Magnesium?
I was listening to a podcast that suggested even using lotions infused with magnesium is helpful. However, most of the research seems to say that we need it orally – either as a supplement or as part of our diet. Some ideas of foods to eat include leafy greens (i.e, spinach and kale), avocado, dark chocolate, legumes, whole grains, nuts and seeds. Personally there are lot of things on that list that I eat regularly and enjoy consuming. If you don’t like those foods (which have a lot of other health benefits that I’ve blogged about before) there is always the supplement route!

Do you take magnesium? Have you noticed a difference with your physical or mental health? I’d love to hear your thoughts. And everyone, keep making the most of it!

Sources:
https://www.ncbi.nlm.nih.gov/books/NBK507245/
https://centrespringmd.com/the-benefits-of-magnesium-for-mood-mental-health/
https://www.healthline.com/health/magnesium-anxiety
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7352515/#:~:text=Some%20epidemiological%20or%20observational%20studies,symptoms%20%5B50%2C51%5D.

How to Engage in Micro Self-Care

Last week I wrote about macro self-care – doing something “big” for yourself as a way to recharge. These things are important, but also a little harder to do, especially for Spoonies/Warriors. The other side of macro self-care is micro self-care. These are little moments you can spread throughout your day in order to get that oh-so-important self-care in. Micro self-care can take as little as a few seconds, up to several minutes. Not only is micro self-care easier (and less expensive) to engage in, it can be done on various energy levels (so important for anyone with chronic pain and illness, as you all know) and it has more benefits than macro because of the frequency of it.

Spending even 5 minutes outside is a great self-care practice.

If you Google “micro self-care” you will literally see hundreds of different ideas for what you can do. Here are a few of my favourites:

  1. Meditation or deep breathing (or grounding, and so on). You don’t need to sit and meditation for 20+ minutes. In fact to start it’s actually better to just do 3-5 minutes. And it’s something you can find time to do at any point in your day.
  2. Gratitude Practice – say out loud or write down 3-5 things you’re grateful for (it’s been shown to boost happiness)
  3. Journal – you don’t have to write down every thought or everything that’s happened. When I journal I often reflect on something specific (i.e., use a prompt) or look at my physical, intellectual, spiritual and/or emotional bodies and see if there’s anything to reflect on, limiting beliefs I can forgive myself for and/or something I’d like to work on today.
  4. Stretch – stretching is something most of us can do more of as it’s really good for our bodies. Take a few minutes to do a few stretches is a great way to care for your body.
  5. Do some sort of quick exercise – walk around the block (my favourite) or even just marching in place or do 5 minutes of some sort of strengths-based chair workout.
  6. Read – set a timer for 5 minutes and read (or just read a poem, or a set a page goal for a book – 5-10 pages for example).
  7. Go outside – even if it’s chilly out, spending a few minutes just being out in the fresh air is great for our bodies and minds.
  8. Drinks a glass of water or tea – we often under hydrate so water is always the best option. Alternatively I always feel good drinking some of my favourite tea.
  9. Make your bed – this seems silly and simple and yet I (who often doesn’t make my bed) feel so good when I make it (and also feel better when I get into a made bed at night… actually I’m going to make my bed now).
  10. Make plans with a friend – this doesn’t mean you actually have to go out with this friend at this moment but even just making the plans via text or phone call can make us feel good and give us something to look forward to.

These are just some ideas to get you started with micro self-care. There are many more that I do. Some of these daily, many of these within a day, and some of these less often. I know that the more I do, the better I feel (mentally and physically). What are your favourite micro self-care practices?

Keep making the most of it everyone!

Video: Daily Mindfulness – Compassion with Equanimity

Added from the work of Kristin Neff.

This practice is particularly good for anyone finding themselves in a caregiving role. This may be as a healthcare practitioner, doctor, nurse, or as someone taking care of an elderly parent, a partner or child who is chronically ill, or really any other caregiving role. Sometimes the best thing we can do is offer compassion to another, while also taking care of ourselves.

Keep making the most of it!

Myths & Misconceptions about Glaucoma

The one chronic illness diagnosis I seem to talk about the least is glaucoma, yet this is the first one I was diagnosed with. I remember getting the diagnosis and being quite upset. Why? Because I was only 29 at the time. Both of my parents have glaucoma, and it runs on both sides of my family. My siblings and I have literally been tested for it yearly with our annual eye checkups since we were children (I am also the only one of my siblings that currently has glaucoma). Usually when I do mention that I have glaucoma a number of misconceptions come up for people. So, with some research, I thought maybe I could address those now.

But first, what is glaucoma? Glaucoma is a degenerative eye disease that causes damage to the optic nerve, which is required for good vision. Usually this is due to high eye pressure.

Now on to 5 myths & misconceptions about gluacoma!

  1. Glaucoma is only found in old people – so people are usually quite surprised when I tell them that I have glaucoma, and how young I was when I was diagnosed. The truth is that even babies can get glaucoma, and it can occur at any age (thus why I was tested since I was young). It does commonly run in families (often hereditary, but not always), and nearsightedness increases the risk of glaucoma (my current ophthalmologist told me I’m “extremely nearsighted” – this is true lol).
  2. If you have perfect vision, you can’t get glaucoma – not relevant to me, since I’ve wrn glasses since I was 8, and as I mentioned I am extremely nearsighted. However, upon doing some research for this post, I have learned that it doesn’t matter how your vision is. Glaucoma is known as the “silent thief” because there are no symptoms for early glaucoma. Due to that, it’s important for everyone to at least get a regular eye test (yearly) and definitely talk to your eye doctor about glaucoma.
  3. You will definitely have high eye pressure – I actually haven’t had high eye pressure since I was 29 (after a few treatments it’s been relatively stable). It’s still maybe slightly higher than most people’s but it’s very manageable. Apparently there are 2 types of glaucoma, when you have normal-tension glaucoma, you don’t have elevated eye pressure at all (perhaps another reason it’s called the “silent thief” as one of the main tests for glaucoma is to check eye pressure).
  4. Glaucoma always causes eye pain – I have actually never had eye pain from my glaucoma. To my knowledge neither have my parents (whose glaucoma is much more advanced than mine) – though I could be wrong so don’t quote me. While glaucoma can cause eye pain, symptoms do often vary from person to person so it’s not a guarantee.
  5. You will become blind – So my paternal grandmother did actually become blind from glaucoma (by the time she was in her late 80s – though she had poor eyesight for longer). Treatments, however, are much much better now. And according to ophthalmology associations, it doesn’t lead to vision loss for most people any more, especially those with “moderate” glaucoma (which I have a feeling I fall into this camp). Proper eye care (regular doctor visits) and treatment is important in preventing the disease from becoming worse.

So while glaucoma is definitely not fun and can have some not-so-great consequences, for most people – when they take care of their eyes – it’s not the worst diagnosis. For the most part I actually forget I have it. I hope this helps to clear up some myths and also, I hope this normalizes glaucoma for any other “young” glaucoma warriors out there! Keep making the most of it everyone!

Video: Passengers on a Bus (Dealing with Chronic Illness Thoughts)

Our difficult thoughts and feelings are like disgruntled passengers on a bus that we are driving. What do we do with those passengers? Is it working? What can we do instead?

Working with our thoughts is one way to keep making the most of it!

Myths & Misconceptions about Fibromyalgia

A few weeks ago I wrote about the myths and misconceptions about UCTD, one of the diagnoses I have. Another diagnosis I have is fibromyalgia. This is because some of the pain I’ve experienced is not joint related, and the best explanation that could be given for it is fibro. While there are a ton of misconceptions about UCTD, I think there may be even more about fibro, particularly from the medical/healthcare community, which is unfortunate. So I wanted to see if I can help clear some common ones up.

  1. It isn’t a real illnessalso known as “it’s all in your head” or “you’re just depressed” or “you’re just tired.” In actuality it is a real diagnosis as designed by the American College of Rheumatology. Though it can be summed up as chronic, widespread pain, there are actual diagnostic criteria for it. Part of the reason people think it isn’t real is that the cause of Fibro is mostly unknown, though there have been some fascinating studies recently about possible markers found, and there are many theories (such as those by Dr. Gabor Mate) that suggest that it is at least partially trauma-related (think biopsychosocial approach – biological causes, psychological causes, sociological causes to illness). While there are many associations between fibromyalgia and depression (fibro can lead to depression, depression can also lead to pain/fibro), there is nothing to suggest that pain isn’t real or that it’s depression or general tiredness. (It also doesn’t lead to depression in everyone, nor does everyone that is depressed have fibro).
  2. It’s a catch-all diagnosis – on a related note, many people just assume that if a symptoms can’t be explained, then it has to be fibro. While I mentioned some of my own symptoms weren’t explained by UCTD, that doesn’t automatically mean they are from fibro. There are actual diagnostic criteria such as: (1) pain and symptoms over the past week, based on the total number of panful areas out of 19 parts of the body plus level of severity of fatigue, waking unrefreshed, and cognitive problems; (2) symptoms lasting at least three months at a similar level; and (3) no other health problem that would explain the pain and other symptoms. (American College of Rheumatology) More info. Interestingly, my previous rheumatologist told me that about 1/3 of people with SLE, RA, UCTD, etc. also have fibro.
  3. Tender points are needed for diagnosis – on the final related note, this is old news. While the diagnostic criteria does state that there are 19 areas checked, and doctors may look for tenderness, that has been removed from the diagnostic criteria (see the above more info for that too).
  4. It can’t be treated (or just take some medication and you’ll be fine)also known as “alternative treatments don’t work,” “you can’t do anything about it,” and “you shouldn’t exercise.” Apparently medication for fibro only works some of the time (I’ve read between 20-40%) so while it may be helpful it isn’t the best bet. I was put on Lyrica/pregablin for fibro symptoms, and I would say it helped some. You know what helped more? All of the alternative treatments and exercise I did – massage therapy, naturopathic medicine, chiropractic adjustments, physiotherapy. In fact I managed to get off of Lyrica because of exercise. I’m not the only one either. There are tons of reports of these things being helpful. And please note, I’m saying helpful, not a cure.

Hopefully this helps you feel better about your diagnosis, and/or this is something you can show friends and family who maybe have trouble understanding what you’re going through. And most importantly, keep making the most of it!

Video: Daily Mindfulness – Your 100th Birthday

This short guided meditation can be a useful way to help clarify your values. Having chronic pain and illness sometimes interferes with us living by our values, or even remembering what they are. I find it useful to re-clarify what they are for me so that I can keep making the most of it, and I hope you can too!

Also, I just launched a side-business as a meditation teacher. If you’re interested in 1:1 classes online and self-paced programs online, check out my website – Aligning Mindfully. I also started a second YouTube channel for Aligning Mindfully with 5 minute meditations on it.

Video: Daily Mindfulness – Long Body Scans

One of the most effective practices I do in order to better cope with physical pain and other sensations of chronic illness is the body scan. The research also supports it being helpful. Interestingly it’s also been used as a meditative practice for hundreds of years (possibly longer) to help cope with physical sensations. While it can be a bit scary for chronic pain/illness warriors to go inside, the benefits can be well worth it. This practice is also great because you can totally do it lying down (as long as you’re not at risk of falling asleep). This versions is half an hour long, so if you’re not quite up to doing it that long yet, check out my meditation channel for the shorter version.

Keep making the most of it!