Was My Hip Surgery Worth It?

This is a bit more personal of a post than I’ve written for awhile, but I thought it would be important to share my thoughts and feelings about the subject. As some of you may know (if you’ve been a reader of this blog and/or have followed me on social media for awhile), I had a hip arthroscopy to repair a labral tear on my left hip last November.

Post-surgery selfie.

The surgery lasts for about 4 hours, is totally laparoscopic. I was extremely nauseous coming out of the anaesthesia which is no fun. And then there is the recovery period. The first 6 weeks you can’t put any pressure on that side (so again, for me it was the left) so I had to use crutches to get around (which was exhausting, especially because I live alone – though I did have some friends come to help throughout). You also can’t bend at more than 90 degrees during those first six weeks, and obviously, no exercising that hip. (I found some chair workouts to at least get some upper body exercise).

My very tiny scars have faded quite a bit since the surgery.

Then after the 6 weeks, you can start walking again and bending, but no “exercise” for 6 months. And by that I mean there are some physio-approved exercises including light walking and recumbant bicycling as well as specific strength exercise for it, but overall it is pretty limited. And for me, well I help my other UCTD and fibro symptoms with exercise, so being limited is not overly helpful.

Me trying to walk for the first time in 6 weeks.

Recently someone posted in an online group that I belong to, that she was diagnosed with a labral tear and was still undergoing testing for autoimmune diseases. She was asking questions about the tear and treatment options including surgery. Someone else responded to her post saying that she was told by her rheumatologist that labral tears (which can occur in almost any joint) are common in people with lupus and other connective tissue diseases. (Mind you my rheumatologist and orthopaedic surgeon said nothing about this). In my own research I had found that people with fibromyalgia tend to have much longer recovery times from the surgery. In my own experience, I realized over the summer that the pain in my left hip had returned. Not nearly as badly as it used to be, I mean I can sit (including cross-legged) for much longer than I used to be able to, but it was back nonetheless. This leads me to believe that (a) I re-tore the labrum, or (b) it just never healed properly. So that’s what I responded to this other woman’s post.

Still wondering how I survived on crutches for that long.

So, was the surgery worth it? Would I do it again? I don’t know to be honest. Perhaps not. At this moment if someone said to me, well we can go in and fix it again, I would definitely decline. So what I learned, and I suppose what this post is about, is to do A LOT of research before committing to a surgery that some doctors think will help. Unless they are making specific connections to your illness overall, something like this which is elective (because the other treatment option is physical therapy), I would say do not jump into it. I thought I had done my research but I probably didn’t do enough. That being said, I am self-compassionate and acknowledge that I made a decision based on the information I had, and that’s okay. And I choose not to forget that it perhaps did improve the quality of my life in the long-term (remember, I can sit longer now, and as a therapist that is super important). Just many things to consider.

Thanks for reading everyone, and keep making the most of it!

If you don’t mind, I’d love it if you can support my content on Patreon. I recently reduce the fee, and you get bonus perks including 2 e-books and bonus content from the podcasts. This week’s podcast episode is on how to get started with holistic health, check it out here.

Daily Exercises: Chair Abs – Part 2!

Due to the popularity of the first video (and to be honest my love of working my abs this way) I decided to do a part 2. Make sure you consult your healthcare professionals when making changes to your exercise routine. These chair exercises are great for people with disability, with chronic pain, chronic illness, anyone recovery from surgery, and seniors. Make sure you adapt them to your own abilities (which is what I always do too!). Listen to lupus warrior, Trachele, talk about her experiences with exercising on the podcast.

Here is the link to the full workout I reference in the video.

Enjoy your exercises and keep making the most of it!

Daily Exercises: Limited Mobility Cardio

My hip arthroscopy left me limited mobility for 6 weeks so I decided to find some safe ways I could still get some exercise in. Chair cardio is one of those ways! Make sure you always consult with your healthcare team before starting any type of workout and you can always modify to keep things within what is safe for you.

I like chair cardio workouts on Youtube by Paul Eugene but there are tons on there you can find!

Remember, exercise is one of the essentials of health! Check out my podcast episode about that here!

Keep making the most of it!

How has your sleep been?

I can’t overstate how important sleep is to daily functioning. For everyone, and definitely for those of us with a chronic illness. I know I’ve written about sleep before, and honestly, that is because it is that important. I wish I was one of those people who could function after 4-5 hours of good sleep. How amazing would it be to go to bed at midnight and wake up at 5. All the things you could do with the day. Alas, that is not the case for me or probably most of you, so I suppose it is not worth dwelling upon.

Spike was a pro at sleeping.

I will admit that I have not been sleeping well lately. And by lately I mean since my hip arthroscopy four weeks ago. Poor sleep is something I’ve experienced before. Waking up in the middle of the night because of pain, or not being able to get comfortable during the night because of pain. Anyone else with chronic pain experience this? I’m betting I’m not alone. The past four weeks have been slightly different. Yes, initially there was some pain from the surgery, and my hip was swollen, so it was difficult to shift around at night. I like to switch sides during the night, and occasionally sleep on my back or stomach as well. Immediately following surgery I could only sleep on my back. Then about two weeks later I could also sleep on my right side. The past few nights I can get onto my left (side that had the surgery) but only for short periods before I get uncomfortable. Technically my sleep has been improving the past few nights, but not to where I’d like it to be.

This giraffe looks like it’s in sleep mode!

Why is sleep important? Well, for one it can actually help with chronic pain. The better the sleep you get, the less pain you can experience during the day. It also helps with fatigue. That’s not to say your illness won’t make you tired during the day, but at least you won’t be starting off the day exhausted. And of course it is important for your mental health. You’ll be more alert, feel more positive, and likely have at least a bit of extra energy to do some of the things you enjoy during the day (self-care!).

Napping outside it always good! (as long as you’re wearing sunscreen).

So how can we improve our sleep, especially in situations where we are limited in how we can sleep (i..e, position)? I think the best way to go about it is just to make sure our sleep hygiene is as good as possible and that we are taking care of all of our medical needs. Sleep hygiene means we don’t drink anything 2 hours before bedtime (except for sips of water), drink caffeinated beverages after 2pm, exercise at night, do anything in our beds except sleep or have sex, and try practices such as meditation or having a hot bath in order to relax at night. As far as medical care goes, have we taken all of our medications as prescribed and at appropriate times? Have we taken any alternative medications (like marijuana or CBD oil for example) that can help with sleep? Can we sleep in if we need to? I know the last one is hard, especially if we have other responsibilities. Initially post-op I gave myself permission to sleep in (basically up until two days ago when I started setting an alarm again). Give yourself permission to do what is best for you and your health needs, because you can’t take care of your other responsibilities if you don’t!

As much as I like hammocks, I think just relaxing in them works better for me than sleep (Costa Rica throwback).

I would also add that consulting with your healthcare team might be useful as they might be able to suggest other strategies, techniques, supplements, etc to help you. Personally I would be wary of sleeping medication as it can be addictive but ultimately that choice is your own. I hope your sleep improves if you’ve been struggling. Feel free to share your own strategies, by commenting! Keep making the most of it everyone!

How Do You React to New Symptoms and Side Effects?

What do you do when you have an expected new symptom? Or weird side effect from a drug or surgery? Or a better question, how do you feel, not just physically but also emotionally? It’s tough having a chronic illness. It’s tough starting a new medication or having a surgery. And so many chronic illnesses are invisible, so it’s difficult for others to understand exactly what is going on with us.

This is what invisible illness looks like.

The inspiration for this post came from my experience on Saturday morning. I had a hip arthroscopy two weeks ago, and on Saturday when I woke up and started to hop around on my crutches, my foot turned purple, as if all the circulation was cut off. I had a friend staying with me, and honestly, her reaction heightened my anxiety about it. I managed to keep a somewhat level head, emailed some of my practitioners and texted my brother’s partner who happens to be a doctor. Apparently this is a normal reaction after lower body surgeries. Basically I have to keep my foot elevated (at least at heart level) as much as possible. I did also go to the walk-in clinic that my family doctor works at. The doctor I saw looked at my foot and double checked that there were no blood clots, then suggested elevation and compression socks and sent me home.

Purple foot – Saturday morning surprise!

There are a couple of reactions we can have in situations like these, which, let’s be honest, happen often when you have a chronic illness. One, is fear, which, like I mentioned, is easy to be drawn to. It’s the fight-flight-freeze response, with flight or freeze usually taking over. It can be scary, overwhelming, anxiety-producing, even upsetting. It can also cause depression and sadness, because of course, something else stupid and terrible has happened to you. These are normal reactions, and short term responses like this are totally fine. The problem develops when these feelings take over, especially when you have a chronic illness because these situations, these stressors, are going to keep happening. If you are feeling like this more often than not, it’s time for some professional help. Seek out a therapist, because you don’t have to feel this way forever.

Image from: https://www.chconline.org/resourcelibrary/fight-flight-freeze-anxiety-explained-for-teens-video/

The second reaction kind of goes more with the “fight” part of the fear/anxiety response. This reaction is one I often go with which is “how am I going to solve this problem?” I do research (I will literally read scholarly journals online as well as just reddit threads – I need all points of view). I will ask the professionals I know, and the other Warriors I know. I will buy anything I need, whether I have the money or not. I will ask for help (I mean like I needed a ride to the doctor after all). This is a proactive response. The problem with this response is that it can ignore emotion. So, if you’re like me, it’s good to take some time alone to reflect, maybe use some mindfulness, get inside your body and your emotions and let them be what they are. Holding it in can make things worse in the long-term. Mindfulness will be your friend.

This is what I got with my proactive approach – a elevation pillow.

A third reaction is acceptance. It doesn’t mean you don’t experience the short-term emotions of fear and anxiety mentioned above. It doesn’t mean you don’t do some proactive things so you can take care of your body and your symptoms in the long-term. It just means that in the present moment you can understand that this is a thing that happened. It is not a reflection of you. It is (usually) not unsolvable. We all have to deal with acceptance when we have a chronic illness. I did a whole podcast episode on illness acceptance (which I will link below). This is something I strive for always. Can I be accepting when something I don’t anticipate or like happens? I would say for myself, the answer is yes. I do tend to be proactive first, then I try to use mindfulness to experience my emotions, then I try to accept reality. Is this always a perfect process? No. I do have people in my life to help me – mainly a psychotherapist and a naturopath – who are specialists in this kind of work.

Image from: https://www.smartliving365.com/the-problem-with-accepting-what-is/

I hope everyone has a great week. Reminder, I have a premium blog post coming out on Saturday, so if you’re not signed up and you want some more work on self-care strategies, it’s only $5/month and it’s well worth it. Remember everyone, keep making the most of it.

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Surgery & Post-Op World

First of all, I’m going to say that I’m pretty impressed with myself for writing a blog post just 24 hours after coming out of surgery. Also, this was my first ever surgery, so I thought I’d share some thoughts and feelings about the whole experience. If you’ve been following me for awhile you are probably aware that I was diagnosed with a labral tear in my left hip back in March (MRI was back in January). Of course, with Covid-19 any kind of surgical consult, let alone treatment was pushed back and back (also I was floated around to 3 hospitals because very few surgeons specialize in hip arthroscopy apparently).

My sexy hospital bracelet.

I didn’t choose the surgical route lightly. Actually, I took advice from several physicians and healthcare professionals before making the decision. My rheumatologist (actually my rheumatologist was on mat leave so it was the one covering for her) diagnosed the hip tear and sent off for a surgical consult. She also told me to start physiotherapy for the tear as it is often helpful. Because things closed down because of the pandemic, I started virtual physio with my regular physiotherapist mid-April. Though exercise helped a bit, it was minimal. I added chiropractics, and massage back into my routine care (because of my undifferentiated connective tissue disease as well) in July, and then most recently started seeing the naturopath again at the end of September. All helpful, but not enough to take away the excruciating discomfort cause by the tear. They all also offered opinions, some differing, on whether I should have surgery. At the end of the day, with research done on my own, I decided that as my naturopath put it, surgery was really the only option to fix the problem.

And my sexy post-op selfie.

Now, I actually wasn’t nervous about the surgery, especially after finally meeting with the surgeon mid October, and literally being booked for surgery less than a month later. He was confident, read me off the risks which were minimal, and again, I did some research on long-term outcome studies. Yesterday, after I had been checked in, and then taken into the pre-op area for some vitals and questions, I started to get nervous. However, the amazing healthcare team (all the pre-op, op, post-op nurses; pre-op and op anesthesiologists and assistants; and of course my surgeon and surgical team) made me feel at ease. According to my surgeon after surgery, it went “perfectly.” Also a relief.

Post-operatively not so fun. I wasn’t actually nauseous at first and the pain in my hip I rated at a 6-7 (for which they had me on morphine) after about 30-45 minutes later (really was out of it and couldn’t keep track of time) I rated the pain about the same, so they gave me oxycodone, which then made me nauseous. It took another 2.5 hours for me not to feel “as nauseous”… basically the least amount for me to go home (and my pain was also down to about a 4 at the time). Long day. Probably longer for my amazing friend, Mike, who picked me up from my appointment and then took care of me at home (even brought groceries, and Starbucks!). The nausea stayed until like 7:30pm. Honestly, I think food helped. And I was pretty out of it all day. Oh yeah, they gave me Gravol for the nausea which totally made me drowsy. But we had sushi, and watched Netflix until like 9, when I passed out in bed.

Is everyone else singing, “Vanilla Ice, Ice, Baby…”

At this point I’m more annoyed about the post-op complications I guess? First, sore throat which apparently is common after coming off of general anesthesia, but I didn’t know that. I’m trying to drink a ton of liquids to help! Second, I have numbness in the groin area… maybe I’ll share more about that on a later post but let me say, not fun. Finally, living alone and trying to get around on crutches post-op is not fun. I have to ice my hip constantly, and then it took me forever to get coffee/breakfast ready for myself this morning. If it weren’t for the pandemic, my mom would’ve flown out to help me. Oh well, I suppose this is Chronic Pain Warrior life.

I’m quite impressed with my breakfast abilities this morning!

That was mostly thoughts… as for feelings, I’m tired and sore and frustrated (about the numbness) but also relieved to have the surgery over with, and hopeful that I will have significantly less pain in my hip. I mean, if I’m going to be a practicing therapist soon I need to be able to sit for long hours without looking like I’m in discomfort, so I can be present on focused on those future clients of mine!

If anyone else has an op/post-op experience they’d like to share, I’d love to hear from you. And remember, keep making the most of it. 🙂

Switching Up Routines

Hey Everyone! I decided to join this chronic illness blog linkup thing this month so I’m going to use their writing prompts for a few of my posts. Honestly, I think it can be helpful to use writing prompts from time to time. Not because I ever run out of topics to write about (I doubt that will ever happen) but because it causes me to think differently and even more critically. I decided to start with the topic of “switching” which can be anything that has switched up in our lives.

I recently left my retail job of the past 7 years. I was burnt out, had ongoing issues with a manager, anxiety about working with customers so closely during covid (so many anti-maskers and people just not understanding how to wear masks, and/or socially distance), and I wanted to concentrate on school. I am halfway through my third last course of my Master’s, and my Practicum Application Package is due November 1, so I basically have October to complete it (and trust me it’s huge). So, this means that I’ve had to switch a lot up in my life. But I view change as a good thing, and there are things about this change that can benefit my health.

Can you guess where I worked? Overall I really enjoyed my time there and think it’s a good company.

First of all, my mental health has already benefited because there is one less thing on my plate. And, like I said, it was something that was causing me a lot of stress. My physical health is also benefiting. My labral hip tear was always made worse by standing for 8+ hours straight every day (okay there was a half hour break in there I guess). Now I am able to “switch up” (like what I did there?) whether I’m sitting, standing, walking, stretching, exercising, laying down, as much as I want! My hip pain has already decreased tremendously which is awesome. I will still likely need surgery but I don’t feel as desperate for it at the moment. My health is also benefiting because I have more time to schedule in appointments. I’ve already talked to my chiropractor about more sessions, and I can fit in physio, massage therapy, acupuncture, and psychotherapy much more easily because my time is flexible.

My body rarely ever swells up! My poor finger (the swelling is gone btw, might have been a fluke).

My daily routine is switching up in other ways too. I have more time to focus on my side projects – like this blog, my podcasts (I have two), some other content and merch I want to create. Plus integrating school into the mix, and finding time for other things I love like playing the piano as well. My routine isn’t the same everyday, though there are similarities – like I wake up and exercise or do yoga first thing. Change is a part of life, it is inevitable. Whether change is good or bad we have to embrace it. Yes, for me this change has been good, but even when change is not good (like the loss of my sweet Spike), I know that it is what we do with the change – the free will and choices we have and make – is what is important. I could have just filled my free time playing video games and watching movies (not to say I won’t do any of that) but instead I choose to be productive and creative with this extra time.

I’m literally still so busy that I had to buy myself an actual weekly calendar that I can stare at all day at my desk.

How are you switching things up this month? What changes are you encountering and how are you dealing with them? I’d love to hear from you in the comments, or via DM on Instagram (@janeversuspain).

Stay safe everyone!

How’s Your Pain Today?

I always have a million topic ideas in my head (well technically I write them down on Stickies because I don’t want to forget them) but I often end up going with something currently relevant to me because, well, it just makes more sense to. As I’ve mentioned before, in addition to fibromyalgia (and maybe lupus) I also have a tear of the anterior labrum (hip) – I’ll throw in a picture of what that looks like). This tear is brutal. Initially my rheumatologist told me that it could be taken care of with physio and if that doesn’t work, then surgery. She asked me if I’d like a referral to the surgeon, to which I said yes. This was March 2020. About a week before Covid-19 really went for it and we started shutting everything down, including “elective” surgeries (because is a surgery that will take away pain really elective?).

hip_labral_tear_intro01Image from: https://eorthopod.com/labral-tears-of-the-hip/

Anyway, the pain has normally been around a 7 in my hip. I’ve been doing physio (virtual) since the end of March and while my physiotherapist is amazing (check out my podcast), it also doesn’t really seem to be helping with this particular problem. Fast forward to last week Thursday when I leaned against a counter at work while I was talking to my boss… and I happened to learn right against the tear. Talk about excruciating pain running down my entire leg – hip to ankle! But I sucked it up and stayed at work and powered through. The pain now around an 8.

IMG_7670Even with pain at an 8 I can still enjoy the great outdoors (Niagara on the Lake, Ontario)

Fast forward to Monday, when I’m doing my normal hardcore workout. It’s an upper body one, so I’m not too concerned because my hip is normally fine on these workouts (sometimes I have to adjust lower body and full body workouts to accommodate my hip). Well, as I moved to get out a position, I heard and felt a “pop.” This seemed like my hip popped in and out of place (though upon some research I read that’s not really a thing that happens, so I’m not sure what exactly happened). Now the pain is a 9. I went to work Monday and Tuesday, and then got a doctor’s note for a week off from today (Wednesday) through next Wednesday.

Bfc1%ODwRQqrhxfVqJaK5QSpike is a good nurse.

So how can I still smile and laugh through all of this? First of all, that’s not always easy. I have to frequently change my position (standing, sitting, walking, lying) in order to feel comfortable because I can’t really be in any of them for too long. At the end of the day though, I can sit and feel sorry for myself (or be hard on myself because technically it’s my own fault it got worse) or I can (a) be productive and constantly call the hospital to see if they can do this type of surgery now, and (b) realize that pain, even chronic pain, is a temporary sensation. I can do meditations that focus on physical pain (which I did this morning), I can write a blog post, I can rest, and I can still have a life with this, because the other option is to not and I refuse to do that.

b32b0b08e2b74c9dab175157eea3f602Upo reserch, this is the type of surgery that needs to be done. Image from: https://orthoinfo.aaos.org/en/diseases–conditions/slap-tears/

How are you all feeling about your pain today?

Also, if you haven’t yet checked out my podcast – Chronically Living and how to make the most of it (Apple Podcasts and Spotify), the latest episode is on Pelvic Health. I would really appreciate some reviews and ratings for it (plus I have a little promotion going for that – see my Instagram @janeversuspain for more details).