Santosha

I was doing a meditation recently (through my favourite meditation app) and the meditation teacher brought up of the concept of Santosha, which is a Sanskrit word that essentially translates to contentment. After doing the meditation I decided to look a little more into the word and it’s meaning because I think contentment is a really hard concept for many people to practice (myself included) and especially for those with chronic illness.

What is contentment exactly? The dictionary defines it as a “state of happiness and satisfaction.” It can be viewed as being positive even when things are difficult. Now I know I can hear some groans. Yes, positivity isn’t a cure for anything, disease or otherwise. And no, I’m not saying one needs to be positive 24/7. In fact there is some psychological research that states that too much positivity is counterproductive. However, what I mean here is not just giving up on life because of its difficulties (and let’s face it, every human faces difficulties… those of us with chronic illness might just face a few more). Instead we look to find how our difficulties and challenges can lead us to personal growth. My own personal growth journey has included riding the waves of the good and the bad and learning to to (mostly) be content with my life as I have made changes. Yes, I get sad, depressed, anxious, anger, angry, frustrated, and the whole variety of human emotions. I also try to find the good in my experiences, come up with plans, and change and grow as necessary.

Can you spot me up there?

How do we practice the concept of santosha? I think it begins with mindfulness, through practices like meditations, body scans, yoga, breathwork, and so on, that keep us in tune with the present. Because anxiety is worrying about the future and depression is ruminating about the past. We can’t change the past and the future hasn’t come to fruition just yet.

  • practice positivity as much as you can and remember that making assumptions about yourself, others, the world, your illness, etc. can hinder your own personal growth.
  • be purposeful in your actions and put your best effort into everything you do, even if you’re not well enough to do much.
  • control what you can, and let go of what you can’t, or as with mindfulness – just keep breathing.
  • remember that contentment supports compassion, including self-compassion, which you definitely need if you’re a chronic illness warrior.
  • be grateful for the good things in your life because even at it’s worst, there’s usually at least one thing you can be grateful for.
  • serenity goes with contentment and giving up the excess, the things you don’t need, may help with that.
Content.

I am 100% not saying that this is easy to practice. Nor am I suggesting that it can be (or should be) done all of the time. I do think that there is some benefit in it though. Being content with ourselves, circumstances, whatever, doesn’t mean we can’t change and grow, but rather may facilitate it instead. As always friends, keep making the most of it.

Switching Up Routines

Hey Everyone! I decided to join this chronic illness blog linkup thing this month so I’m going to use their writing prompts for a few of my posts. Honestly, I think it can be helpful to use writing prompts from time to time. Not because I ever run out of topics to write about (I doubt that will ever happen) but because it causes me to think differently and even more critically. I decided to start with the topic of “switching” which can be anything that has switched up in our lives.

I recently left my retail job of the past 7 years. I was burnt out, had ongoing issues with a manager, anxiety about working with customers so closely during covid (so many anti-maskers and people just not understanding how to wear masks, and/or socially distance), and I wanted to concentrate on school. I am halfway through my third last course of my Master’s, and my Practicum Application Package is due November 1, so I basically have October to complete it (and trust me it’s huge). So, this means that I’ve had to switch a lot up in my life. But I view change as a good thing, and there are things about this change that can benefit my health.

Can you guess where I worked? Overall I really enjoyed my time there and think it’s a good company.

First of all, my mental health has already benefited because there is one less thing on my plate. And, like I said, it was something that was causing me a lot of stress. My physical health is also benefiting. My labral hip tear was always made worse by standing for 8+ hours straight every day (okay there was a half hour break in there I guess). Now I am able to “switch up” (like what I did there?) whether I’m sitting, standing, walking, stretching, exercising, laying down, as much as I want! My hip pain has already decreased tremendously which is awesome. I will still likely need surgery but I don’t feel as desperate for it at the moment. My health is also benefiting because I have more time to schedule in appointments. I’ve already talked to my chiropractor about more sessions, and I can fit in physio, massage therapy, acupuncture, and psychotherapy much more easily because my time is flexible.

My body rarely ever swells up! My poor finger (the swelling is gone btw, might have been a fluke).

My daily routine is switching up in other ways too. I have more time to focus on my side projects – like this blog, my podcasts (I have two), some other content and merch I want to create. Plus integrating school into the mix, and finding time for other things I love like playing the piano as well. My routine isn’t the same everyday, though there are similarities – like I wake up and exercise or do yoga first thing. Change is a part of life, it is inevitable. Whether change is good or bad we have to embrace it. Yes, for me this change has been good, but even when change is not good (like the loss of my sweet Spike), I know that it is what we do with the change – the free will and choices we have and make – is what is important. I could have just filled my free time playing video games and watching movies (not to say I won’t do any of that) but instead I choose to be productive and creative with this extra time.

I’m literally still so busy that I had to buy myself an actual weekly calendar that I can stare at all day at my desk.

How are you switching things up this month? What changes are you encountering and how are you dealing with them? I’d love to hear from you in the comments, or via DM on Instagram (@janeversuspain).

Stay safe everyone!

Diagnosis Update

Isn’t it always the case when you have an autoimmune disease that there are multiple updates over the years? Like either a change of diagnosis or an added diagnosis. I follow so many people on Instagram with the same experiences. This week I had an appointment with my rheumatologist (and a resident, so two docs which was fun – by the way I love that the hospital I go to is a teaching hospital because I think that makes everyone work a little harder to provide excellent care), and of course there is an update to my diagnosis.

Image from: https://www.niehs.nih.gov/health/topics/conditions/autoimmune/index.cfm

Lets travel back a bit. First I was given an incorrect diagnosis of gout back in 2015 by my GP. Fast forward to February 2016 when I first saw my rheumatologist, ran some tests and then a month later gave me (maybe a little too quickly) a diagnosis of lupus. Fast forward to June 2016 and she added fibromyalgia to the list. Then we skip over to November 2016 and she decides that I don’t qualify for a lupus diagnosis and I am a “mystery.” So I have remained with a fibromyalgia diagnosis since then.

Me back in 2016.

Now my diagnosis has been updated to Undifferentiated Connective Tissue Disease, which upon looking up what exactly that was, makes a lot of sense. So what is UCTD? It’s a systemic autoimmune disease that doesn’t quite fit the criteria for any differentiated autoimmune disease – like lupus, rheumatoid arthritis, or scleroderma, etc. I’ve read some different statistics on it, and it seems that around 25% of rheumatology patients have UCTD, and only between 20-30% of patients will eventually get a diagnosis of lupus, RA, etc. Symptoms usually include high ANAs, arthralgia/myalgia, arthritis, Raynaud’s, and fatigue, among a few others.

My symptoms include consistently high ANAs on blood panels that are taken every 6 months, arthralgia/myalgia, I don’t quite get full-blown Raynaud’s but certainly very red and slightly swollen fingers in the cold, sometimes numbness in my fingers or toes, and fatigue. So, while I don’t fit the criteria for lupus, I certainly fit the criteria for UTCD.

Now how does this make me feel? Honestly, a sense of relief. I am happy to have a diagnosis again, and one that seems to actually fit what is going on. My rheumy is going to fill out the paperwork I need for my work coverage (because they’ve been after my sick days), which also makes me feel relieved. Basically, I feel like it’s good to get a diagnosis because the waiting game on diagnoses can be anxiety-riddling experiences as I’m sure many of you know.

Relieved at my diagnosis but missing my baby.

I also want to give you an update on Spike, because last week I mentioned he was at the vet. Unfortunately he had to be put down. I am heart-broken as I’ve lost my best friend.