Video: Values-Based Activities – Colouring

What are values-based activities? They are actions, activities, hobbies, practices, etc. that align with our values (how we want to treat ourselves, others, and the world/what is important to us). Colouring may seem like a silly one, but here me out! You can also check out this podcast episode I did on values-based living.

Try out a values-based activity for yourself so that you can keep making the most of it!

Video: Ways to Understand Anger

This is a metaphor I often use when explaining anger. It has a specific purpose and function for us, but there is almost always something beneath anger. I hope this piece of psychoeducation helps you to understand yourself better. Remember, the content on this blog does not replace seeking help from a licensed mental or other healthcare professional in your area.

For a meditation on working with anger, click this link.

Keep making the most of it!

How to Figure Out Your Values When You Have a Chronic Illness

Which would you rather do – something (a behaviour) to give yourself short-term symptom relief or something (a behaviour) that aligns with your core values, even if the goal isn’t to bring you symptom relief? The first option, by the way, isn’t necessarily connected to your values. There was a time for me that I probably would’ve done the later. Hell, I did do the latter! I definitely acted in ways that weren’t indicative to what was important to me at all but did help me out in the moment. Things like lying in bed, avoiding exercise, asking my partner to rub my back or just stay near me for hours, missing work, and on and on and on. And I’m not even saying that any of these are bad things. They were just bandaids that made that moment better, but didn’t help my pain long term and ultimately had a lot of costs (like the end of that relationship, feeling physically weak, and making work more difficult). Over time, reconnecting with my values became a much more viable response – and in some ways, even helped to decrease my pain.

What are values? They are our principles or standards of behaviour that we want to engage in. They represent what is important to us. Some examples are:

  • acceptance
  • adventure
  • assertiveness
  • authenticity
  • caring/self-caring
  • compassion-self-compassion
  • cooperation
  • courage
  • and on and on and on

Different values can also show up in different areas of our life, like work and education, relationships, personal growth and health, and leisure. Values often motivate how we behave in different situations. Sometimes we just live by our values without thinking about them. However, sometimes, when we find ourselves dealing with chronic pain and chronic illness, we can get removed from our values, like I did. There are two things we can do to figure out if we have been removed from our values while dealing with the terribleness of chronic pain and illness.

  1. Figure out what our values are – using a checklist and/or a bull’s eye.
  2. Figure out (nonjudgmentally) what “unworkable action” we are engaging in that is acting as a “bandaid” but isn’t really lining up with our values and how we want to be long-term.
Unworkable action occurs when: (a) the solution is short-term, and (b) the behaviour takes you away from your values.

Okay, but why should we do all that? You might be wondering why not just stick wth the bandaid solution. And you can. But typically we have better overall quality of life if we live by our values. We engage in behaviours that are more fitting to the person we want to be and the life we want to live. And, what research finds (plus just looking at my own life and the lives of my clients), is that pain and other symptoms bother us less. It doesn’t mean they go away, they just don’t really interfere with our lives anymore. The research finds that our self-care for our illnesses and pain improves when we are motivated by our values (everything from self-direction, pleasure, and health to responsibility and socialization). We become more willing to “make room” for our difficult sensations (and thoughts and feelings) when we live by our values.

There are many ways we can live by our values. For example, when I travel I balance the adventure/activity part with rest.

I’ve shared in a number of posts different ways that I live by my values. Here are a few consistent ways I do in my life.

  • Presence (aka mindfulness) – I meditate daily, do yoga several times a week, and just try to fully engage in as many activities during the day that I can.
  • Fitness/health – I eat healthy (gluten-free, dairy-free, meat-free – though I do allow myself some cheat days) and I exercise daily (walking and/or strength training, and/or physio exercises)
  • Creativity – I’m writing a book, I play the piano, I write screenplays with a friend
  • Adventure – I travel (looking forward to getting back to that), hike, kayak, try new restaurants, meet new people
Actively living by my values doesn’t take the pain away, it takes the hold the pain has on me away.

And those are just some ways I live by my values even with an autoimmune disease and chronic pain. It took a lot of work to get here though, so be kind and patient with yourself (hey, that’s the value of self-compassion). I hope this helps you to make the most of it!

Video: How to Survive in Quicksand

This may seem like an odd topic for a blog about chronic illness and pain, but trust me it’s relevant. The same way you survive quicksand is the same way you can learn to thrive with chronic pain. And no, it’s not an easy process, nor is it something you can learn to do in a few days or weeks, but take it from one warrior that it is possible.

The metaphor and skills are based on Acceptance and Commitment Therapy.

Keep making the most of it!

Why Are You Attached to Your Illness Identity?

How many times have you said, “I am sick” or “I am a Spoonie” or “I am in pain” or “I am depressed,” and so on? And how often do you feel that is really so? That is what you are? If your answers to one or both of those questions is “a lot,” then know you are likely not the only one answering that way. I rarely use those phrases for myself anymore because I find them unhelpful, but before you run away I want to explain why they are unhelpful. Not just from my perspective from my lived experience, but also what theories in Acceptance and Commitment Therapy (ACT) and related research suggests, particularly when it comes to chronic illness.

First I think I need to introduce you to a few terms. The first is event centrality. This can be described as the degree to which a person perceives an event (often traumatic but can also work for being diagnosed with an illness) as central to their identity. In other words, being a sick person is who you are because of your diagnosis. The second concept is the conceptualized self. This refers to who we think we are (in fancy ACT terms we call this self-as-content). The conceptualized self can take on all the identities we have such as being son or daughter, a parent, a spouse, a friend, and of course a sick person. It also includes our self-evaluations, so whether we describe ourselves as smart or dumb, happy or sad, fun or boring, and so on. What sometimes happens is that we get fused with one (or a few) of these aspects of our identity. In other words, we hold it tightly, are attached to it, and in the long-run doing so usually causes us more problems.

How do you conceptualize yourself?

Now this attachment to the conceptualized self can happen to anyone, and we often see it in depression and anxiety as well as chronic illness and chronic pain. There has been some research suggesting that our illness self-concept is a predictor of our adjustment to chronic illness. When we are attached to the identity of being ill we tend to have a lower overall quality of life. I talked about the use of language once on the podcast, and you should listen to that episode if you haven’t already. I want you to think about these pairs of phrases:

  • “I am anxious” vs. “I am experiencing the feelings of anxiety.”
  • “I am depressed” vs. “I am experiencing the feelings of sadness”
  • “I am sick” vs. “I am experiencing the symptoms of lupus” (or whatever illness you have)
  • “I am in pain” vs. “I am experiencing uncomfortable sensations”

You’ll likely notice that you attachment to that identity changes. And when we aren’t overly attached we actually can take better care of ourselves (health behaviours, self-caring, etc.) and our quality of life improves because we find we are able to do more values-based activities that we enjoy (yep, even with illness and pain). When we remove the attachment to our conceptualized self we are more willing to allow our experiences and see them as passing.

We want to have room to engage in values-based activities, because that’s what makes life meaningful.

There’s a few ways we can learn to do this. First, we can just start to notice and name are thoughts and feelings – “I notice I’m having the feeling of an uncomfortable shooting sensation in my hip” or “I notice I’m having the thought that I’m always in pain.” There are tons of ways to create some space between us and our thoughts and feelings when we are attached to them. This is just one way. The other process we can use to change this attachment to the conceptualized self is to develop self-as-context. This is what is also referred to as the noticing self. The part of us that just watches and notices all our experiences: what see, hear, smell, taste, touch, think, feel, do, etc. It’s a part of us that never changes. It’s like the sky and all of the thoughts and feelings and sensations are like the weather. The sky sees the weather but the weather cannot hurt the sky. And if you go above the clouds, the sky is still there, even when it can’t be seen. I’m going to encourage you to follow along with the video below to get an idea of what it is like to experience the noticing self.

I personally find this really helpful (and so do many of my clients) in creating a new relationship with my thoughts, feelings, and sensations, and forging out new identity, where I’m not limited by any of these things because I can notice them. They are not me. I am not chronically ill, I have the experience of having a chronic illness.

Keep making the most of it!

Video: How to Drop the Struggle Against Your Pain

Pain – both physical and emotional – are parts of life. They are also inevitable with chronic illness and chronic pain syndromes. The more we try to fight or resist our pain, the more it comes at us. So, let’s talk about why that is and what to do about it. Because, really, we can’t keep making the most of it if we struggle. Check out this podcast episode for more about this.

Keep making the most of it!

My Ultimate Pain Coping Skills Part 4: Connection

Welcome to the fourth part of my 4-part series on coping skills for chronic pain! Of course, there are way more than these ones out there. The reasons I’ve been focusing on these is because I have personally used them, and there is a ton of research supporting them. This week we’re talking about connection. By connection, I mean social connection – spending time with others. I know this is a tough one for many warriors for a variety of reasons. Many of you may not have a good support network, you may have pulled away from friends or had friends pull away from you because of your pain. You may not be close with your family or they may not understand. This happens to a lot of people with chronic pain and illness. It is important for us to find ways to connect with others, so let’s talk about why that is.

I find it important and helpful to connect socially with my friends, even if I don’t see all of them often.

There is a surprising amount of research in this area. I did a search on Google Scholar and got a lot of results. One area the research has focused on is the actual neural pathways in our brains and there seems to be a connected between physical pain and social pain. What I take from this is that when we experience emotional pain – such as through the loss of social connections – our physical pain gets worse. I’ve touched in previous posts about the connections between physical and emotional pain (mind-body) and how that works. You can also listen to this podcast episode. Other research has found that people with chronic pain tend to perceive others as being hostile toward them. Because it’s perception it’s hard to determine if the others are actually being hostile, but this could be another reason for the increased physical pain when there is “social” pain.

Sometimes pain can make us want to bail on social outings, and yet having that connection can actually decrease our pain.

Okay so if that explains the connection between our minds and bodies in general, what are some of the things social connection does for us that are helpful?

  • Improves our self-esteem and self-confident
  • Increases our sense of control and empowerment
  • Improves our emotional wellbeing.
  • Decreases anxiety and improve mood
  • Changes our pain perception
  • Improves coping skills
I’m lucky to have great support systems, but sometimes we can look outside the box to find social conections.

How that we’ve settled what it does for us, what are some of the actions we can take? How do I get more socially connected when I have pain and illness and all the struggles that come with it?

  • Cognitive reframing, emotional expression, problem-solving, and distancing oneself from pain – this is literally what I work with clients on in therapy, and there are studies that show it increases satisfaction with your support systems, whether those are friends, family or your healthcare team.
  • Accessing pain resources – we’ve all heard the phrase, “knowledge is power” and even by just reading this blog, you may feel more socially connected with others, like myself, who experience pain.
  • Online support groups – even if you can’t find an in-person support group, having an online community is often very helpful for people. I’ve done a post on the pros and cons of these, but in general, if this is the only way you can socially connect with others, it can be enough.
  • Volunteering – if you are physically capable of doing any kind of volunteer work, I highly recommend it. There has been so much research showing that volunteering is good for all humans as it actually increases our happiness because we are helping others. And of course, we are interacting with others too!
  • Lovingkindness Meditation – the idea of this meditation is that we send out kindness to others, as well as ourselves. The others include people we care about, neutral people, people we don’t like, and all of humanity. Some of the benefits include stress reduction, being more compassionate, and better perspective-taking. You can find a version of this here.

I hope this helps you on your journey to be more socially connected and that it helps with your pain tolerance. Keep making the most of it everyone!

Video: Daily Mindfulness – Willingness with Breath

We can begin to learn to become more willing with different sensations and emotions by practicing with our breath. As we learn to make room for urges, emotions and sensations, we offer ourselves more choices in life to live by our values. Please read the disclaimer at the beginning of the video. Only participate if it is safe for you to do so. If you are unsure, please speak with your physician.

Keep making the most of it!

Video: Cooking with Kels – Sweet Potato Bowls

I’ve been eating a lot more plant-based lately and it seems to be helpful fr my digestions, so I decided to share one of my favourite recipes with you. The recipe was also shared by my guest, Kathy A. Davis on my podcast. Listen to it here.

Until next time, keep making the most of it!

Video: When Our Thoughts, Feelings & Sensations Hook Us

“Soul Surrender” composed by Music of Wisdom – licensed from http://www.meditationmusiclibrary.com

This video is meant for psychoeducation only. Please consult appropriate healthcare/mental healthcare professionals as required. When we have difficult and painful thoughts, feelings and sensations, we can easily get swept away from them, as they pull us from what’s important to us and how we’d like to be. We can also learn to effectively manage ourselves when these thoughts, feelings and sensations arise.

Keep making the most of it!

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