The Importance of Flexibility

I’ve been thinking a lot about cognitive flexibility lately. It’s often a topic that comes up at school, but beyond that, it’s something we need to think about, not only if we have a chronic illness but also during a pandemic, like the one we’re currently in. Some of you may be asking, what do I mean by cognitive flexibility, so here is my short explanation: it is your mental ability to change your thoughts and behaviour as needed to adapt to different environments and situations. An example would be if you were to move to a different country, with a different culture, and how easily you were able to adapt living there. I’m going to break this post into two parts. First, being cognitively flexible as a chronically ill person, and second, being cognitively flexible as any human being living during a pandemic.

How easily do you adapt to changing situations?

Having any chronic illness or dealing with chronic pain for any reason requires us to be cognitively flexible in order to more easily cope. People with poor cognitive flexibility tend to be more prone to mental distress, though of course that is also a more complicated process. In terms of dealing with chronic illness, I think about how I have to adjust to social outings or exercise or work. Recovering from hip surgery, how am I adapting to being on crutches, and not bending past 90 degrees in the hip. It can be difficult to adjust and adapt to these types of situations. This process is going to be different for everyone. Understanding what your limitations are is certainly important, as is the ability to not give up. One thing that’s important for me is being able to exercise because I’ve found it decreases my overall pain levels. But how do I do that now? Chair workouts is what I came up with. Why? Because they are available on YouTube and I can adapt them to what I can do. Another example from my own life is about cleaning. I’m not a neat freak but I do like a clean house. However, I can’t sweep or mop (I have laminate floors) so in my opinion, my place is a disaster. However, I tend to let that go because it isn’t helpful right now, because I literally can’t do clean the way I normally would (plus I live alone right now so there is no one else to do it for me). I have one good friend who always says, “I know you’re a strong and independent woman but you can ask for help.” What he isn’t taking into account is that I do ask for help when I need it (literally different people bring me groceries, take out my garbage and help me with laundry, including him!). When I don’t ask for help, it’s because I don’t need it, but I am flexible enough to ask for help when I do.

My favourite chair workout channel.

Now, during this pandemic I’ve seen a lot of people post on social media about many things, but I’m going to just use one example for this post, and that is gyms being closed (here in Canada at least). The most common argument against closing gyms (even though it is known that the virus is airborne and we all breathe hard at the gym) is that working out is good for your mental health. 100% it is! As a therapist-in-training I will not argue that fact. What I will say, is how flexible are we being with our workouts? I was someone who worked out at the gym between 3-5 times a week before the pandemic. The first thing I did when the gyms closed was figure out how to utilize the limited space I have in my place to do workouts at home. With zero equipment. Apps, YouTube, online gym programs (my gym literally offered free access to all kinds of stuff to members even though we weren’t paying fees anymore). Yes, it is not the same as going to the gym. It doesn’t offer a social environment, maybe not the same type of workout, but I actually got in better shape working out from home because I didn’t have to go anywhere, just change my clothes. I think it’s important that we look at what we are upset about during this time and figure out ways to do actively make the most out of the situation we are in. I’m not saying it’s easy, nor that there is a solution for every person or situation. For some situations we just need to adapt our mindsets to our current reality.

Image from: https://wiki.its.sfu.ca/permanent/learning/index.php/Cognitive_Flexibility

I hope this give you some food for thought. For now, keep making the most of it!

Taking a Break with Family

As I titled this I realized some people might automatically read “from” family which is 100% not what I’m going for. Rather, taking a break from all of the other things in life to spend time WITH family, is something some of us probably need right now (some of you may have just spent the past 6 months locked up with your family and may need the opposite type of break)! I needed the break for a couple of reasons: (1) I live far from the rest of my family, (2) because of the pandemic this is the longest I’ve gone without seeing them, (3) work has been hella stressful (also due to the pandemic), and (4) while your support system can include many other people, mine also includes my family.

Me and the bros in Kalamalka Park, BC. Epic hike!

And so, I risked it and went on a plane, taking me from Ontario to BC. (To be honest the airlines are doing a decent job at making travel as safe as possible and all passengers seem to consider safety important). Both of my brothers live in BC with their partners, and it was my younger brother whom I stayed with. The trip itself was a mix of physical activity (hiking, kayaking, yoga – all my faves) and chill time (eating and drinking at wineries and pubs, and watching movies).

Yoga day at a winery overlooking Lake Okanagan.

There are two parts of my trip that I valued the most. One was hanging out with my younger brother, both the first day I got in when we just toured around town and caught up on what’s been going on with one another, and then when we binge watched three movies back-to-back on Sunday night because we both love movies. The other was when my older brother and his wife joined the other three of us on a hike, winery tastings, and dinner, allowing us all to spend some time together. Interestingly it is my older brother I’ve seen the most of during the past few years as his work often brings him to Toronto to visit. Because of Covid-19, his company has restricted travel until the new year.

How we do a winery!

Having a mental break and spending it with people I love was so important. I maybe pushed a bit too hard on some of the hikes but it made me rethink where I want to be in the near future, and to be honest, I never consider change a bad thing. We’ll see where the future takes each of us.

If I can also get some thoughts, prayers, whatever you personally do for Spike I would really appreciate it. He is at the vet, having been extremely sick over the past 18 hours.

When Spike was feeling much better on his 11th birthday a few weeks ago.

Summertime Self-Care

Every time I say the word summertime I start singing: “Summertime and the livin’ is easy.” I think it’s from playing it in high school jazz band many moons ago, and actually when I pulled my sax out in the spring it was an easy song to get back into and play. Yes, here in Canada we are already half way through summer because let’s face it, summer is June, July, August, and if we’re lucky, September. That doesn’t mean we should talk about some summer-related self-care we are all hopefully engaging in, and if not, then it’s not too late to start!

Hot town, summer in the city.

Obviously this year is a bit different due to the pandemic which is spiking and second waving in certain parts of the world, while other parts (ahem USA) haven’t finished their first wave yet. But there are still some activities I’ve found to do this summer that have been great for my body, mind, and spirit – three important aspects of self-care. Personally, I think spending as much time as possible outside is really important for my mental health. If you live anywhere that gets a long, cold winter (Canada, northern US, Russia, Scandinavia, etc) then you understand how much needed the summer sun is. Whether it’s sitting in your back (or front) yard, on your porch, your balcony (apartment dwellers), a bench in a park, or wherever, getting outside for at least an hour a day can make you feel a lot better. And many other favourite self-care activities can be done outside – meditation, yoga, reading, etc.

Backyard chillaxin’ with Spike!

If you’re looking for something a little more physical, I’ve talked about hiking and kayaking, but really any outdoor sport you’re capable of doing is great, even just going for a walk. If it’s safe to do so, having dinner or a drink with a friend on a patio (social distanced of course) can be a good way to get some social self-care in, which many of us weren’t able to do (other than Zoom) during self-isolation. So if you’re in a place that is a little more open and not currently spiking, and you’re safe to do so, getting out with a friend or two might be a good idea.

I always aim to get a little movement in!

Whatever you decide to do for summertime self-care, just make sure you’re staying safe, wearing a mask, and continuing to social distance until the medical professionals tell us it’s safe to do otherwise. Yes, this year is different, but that doesn’t mean we shouldn’t still be taking care of ourselves.

Setting Work Boundaries

When it comes to work, a lot of people have difficulties setting boundaries. For those of us with a chronic illness, it becomes a difficult but necessary part of literally being able to work. Why am I bringing this up today? I have been off of work for the past week because of my hip tear, which seemingly go worse when I (a) accidentally leaned against it at work, and (b) my hip popped out of and back into place when I was doing an elevated pushup. Now I’m set to go back tomorrow but I will probably need some accommodations, because, despite the fact that I felt worse on Monday and now better today, I do a lot to mitigate the pain. The other part of this equation is that work has been so stressful since we fully reopened (limited customers) at the end of May, and I haven’t been able to set boundaries around that, I’ve become more anxious and had a general increase in body pain anyway. Now’s the time to make a change.

Even on the beach I had to change positions a million times.

So how do you set work boundaries? I mean, no boss or company wants to have to accommodate for an employee, right? Yet as much as I hate asking, I have seen some managers do it for others, and have had some managers do it for me. Plus, legally in Canada and some other countries, employers can’t discriminate because of (dis)ability. In the past I’ve always approached it with a very direct attitude. This is what I need, this is why I need it, and without it I can’t do my job properly. Direct works best. And when in doubt I have a doctor’s note as well (I currently have a few doctor’s notes in my file with no “expiry” date to them). Plus, I always tell my bosses that I will be flexible when needed (and I have been) because I understand the importance of the business (I work in electronics retail so it’s importance really depends on your own value to it).

Image from: https://www.flickr.com/photos/moodlegal/32946222992/

What’s the difference now? Covid-19. As I’ve mentioned, we aren’t through it yet. At my work, we still have 18 staff members not back yet, we let limited customers in the store which is still too many at a time at times, and things are definitely not running as “normal.” What I currently need because of my hip: to be able to change physical positions as needed – sitting, sitting with my legs up, standing, walking, lying down. What I need because of stress: to not be the only person scheduled at customer service where I get long lines and yelled at by customers all day. Here’s the thing, I am scheduled alone at customer service for the next 3 days. The only other person scheduled for my entire department is collecting web orders, so literally nothing to do with directly dealing with customers. Therefore, I can’t just leave my post to change what position I’m in. I will stand for 9 hours with just my 30 minute break. Bad for hip and bad for stress. Do I need to say something? Yes. How will it go? I guess we’ll find out.

Being in nature is helpful for stress. Take a time out every know and then in order to heal.

I’m curious if any of my fellow Spoonies have been back to a work environment yet and what they are doing for boundary setting. This is a time where I wish I could work from home, but wishing isn’t going to make that happen at the moment. Please comment or DM me on Instagram and share your work boundary stories. Stay Safe.

How to Wear a Mask: A Short PSA

There are so many immune-compromised people out there, and many of you watching this may fall into this category. While I take anti-malarials and not immunosuppressants, so I’m not at greater risk for Covid-19, I think we need to keep passing these messages around. Many (mostly older) people don’t seem to understand how to wear a face mask properly. I don’t think this is necessarily intentional, and I think we really need to pass this information around. We’re not out of this pandemic yet and it could be awhile before a vaccine is on the market. Stay Safe Warriors!

From Virtual Dating to Real Dating? Pandemics, Reopening, and Chronic Illness

As we move into reopening phases in many places, some of us might be looking to take all of our virtual experiences and start going back to the “old ways.” Whether that be just seeing our friends in person (crazy thought after so many months, I know!) or going on actual dates, the thought that we don’t have to solely rely on online contact is amazing. Yet, for those of us with chronic illness, slow and steady might be the best course of action.

I miss getting coffees liket

I’m not saying you can’t or shouldn’t start doing “real life” things again. I have started to see some friends in person, and I’ve been back to work where I deal with the public consistently (some lady refused to sanitize her hands but then proceeded to put on a face mask which made me laugh at the lack of logic but okay). What I am more cautious about is heading on dates. For one, assuming any date goes well, there is potential for kissing at the very least (if not more) and exchanging saliva with a stranger when there is still a pandemic going on is probably not the best idea. As cases do become lower and lower that may change, but for now I’d still rather play it safe than risk getting an illness that could be made worse by my underlying illness.

Me at work… keeping others safe from me, and hoping they’ll keep me safe from them.

There is also the strong possibility of a second wave to come yet. If we look back historically to the flu of 1918, the second wave was much worse than the first. And though, yes this is a coronavirus, not a flu, a second wave could be terrible. While I am happy to be a risk taker in many areas of my life (adventure travel, moving provinces or countries at the drop of a hat, changing careers, starting blogs and podcasts, etc) I am not one to compromise my health more than it already is. Does that mean I won’t go on any dates until we have a vaccine? Unlikely, but it does mean I’ll be a little more selective of who I date (as if I’m not selective already lol) and how quickly things move.

Remember when we could share drinks with our friends without a worry?!

What are my other chronic illness warriors thinking about dating right now? Leave a comment, I’d love to hear from you.

Staying Safe During Reopening

I know that with reopening having begun in many places, it’s easy to get the feeling that the pandemic is over and things are getting back to normal. I think what we need to keep in mind is that the pandemic is not over, and may not be over until a vaccine is available, as that is what the researchers are saying at this point. So, as Spoonies and Warriors, we need to make sure we are taking extra good care of ourselves during this time. As I mentioned with my post last week, we may be more susceptible to contracting Covid-19 (and even death) due to our illnesses and medications we normally take.

Image from: https://www.chatham-kent.ca/EconomicDevelopment/covid-19-business-resources/re-opening-and-safety

I was called back into work this week after being on furlough for 2 1/2 months. As far as the staying safe part of back to work goes, there were things I was and wasn’t impressed with. I was impressed that most customers came in with a mask on (and some with gloves so they didn’t have to touch the pinpads with their hands), and that the company provided all workers masks and a few plexi glass screens to keep distance between us and customers upon check out. What I wasn’t impressed with is the ratio in which customers are allowed in the story – it was too busy for the amount of staff, and I was never without a lineup at the front (I was the only person scheduled for returns/exchanges AND transactions for the day). As a result (and probably because I haven’t spent that long standing in awhile) I noticed increased hip pain and decreased mobility in my left hip today.

Look it’s me! Back at work!

Beyond any expectations of the work you are doing if you are called back, there are a few other things to keep in mind. We need to continue with safety protocols such as frequent and proper hand washing (and sanitizing between when you can’t wash as often), social distancing, and personally, I think still trying to remain at home as often as possible. Take care of yourself, because ultimately your health is most important. And until there is a vaccine on the market and Covid-19 isn’t something we reasonably have to worry about anymore, we need to make sure we are staying safe.

Follow the link for the CDC’s hand washing guidelines: https://www.cdc.gov/handwashing/when-how-handwashing.html

 

One final thought of the week, as I reflect on what’s happening both in my own city and to my American neighbours south of me:

Hydroxychloroquine & Covid-19 Deaths…What Does it Mean for Us?

As many of you probably recall, hydroxychloroquine and chloroquine, both of which are antimalarials and often used in the treatment of lupus/SLE were being tested a few months ago as a potential treatment for Covid-19. US President Trump of course quickly jumped on this bandwagon proclaiming that it was a “game-changer.” This was said, of course, as testing was being started, not because of results of testing that had finished. As a result, I remember seeing many Spoonies, particularly those with lupus panicking because they couldn’t get their medications as quickly. And to be honest, I quickly went and refilled my own prescription. Though I’m only borderline for lupus, my rheumatologist kept me on the drug as it seems to have helped my symptoms over the past few years.

Now, results of the first study have been reported in the medical journal The Lancet. And those results aren’t exactly great… Of those patients who received hydroxychloroquine or chloroquine as a treatment, many of them ended up with heart problems and died as a result. So my question is, what does that mean for those of us who are regularly prescribed these meds? As North America starts to open up again (too soon here in Ontario given our daily cases, and WAAAAY too soon in the States given that they haven’t come close to flattening the curve, does that put myself and everyone else at a higher risk of death if we do get Covid-19?

Good thing I stocked up… bad thing it could be dangerous.

Unfortunately from what I read in news articles, I couldn’t find an answer. And no, I haven’t read the study itself in The Lancet (I can only read so many journal articles in a week and I have to read a lot of them for school), so I don’t have an answer. It does make me weary though. I didn’t want to get Covid-19 in the first place, but now I’m feeling more apprehensive about it. I’m very curious how my other Spoonies/Warriors are feeling about all of this and what precautions everyone is taking. Last week I was told to expect to be back at work in the next 2-3 weeks, and I work with the public. And while my company is providing masks to employees, we already know that is just to protect others, and masks don’t actually protect us, which means I have to trust the public to come in with masks as well (based on what I’ve seen, I don’t trust most people). At the same time, as a furloughed employee, I have to return to work when called in. Quite the predicament.

Image from: https://www.lehighvalleylive.com/acts/2020/05/read-my-lips-coworkers-create-clear-masks-for-hearing-impaired-manager-of-lehigh-valley-best-buy.html

Here is the link to a news article from the Washington Post about it:

Washington Post: Hydroxychloroquine Study

I’m hoping more information comes in about hydroxychloroquine and Covid-19, and what the hell that means for us. I’d love to hear your comments and thoughts on all of this, so please leave a comment, send an email (janeversuspain@gmail.com) or DM me on instagram (@janeversuspain). Stay safe.